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Reliability of FUNDES-Child-SE - measuring participation and independence of children and youths with disabilities
Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.ORCID iD: 0000-0001-7886-7171
Mälardalen University, School of Innovation, Design and Engineering, Embedded Systems.ORCID iD: 0000-0002-9210-0986
Department of Behavioural Sciences and Learning, Linköping University, Sweden.
CHILD Research Group, School of Education and Communication, Jönköping University, Sweden.
2023 (English)In: Scandinavian Journal of Occupational Therapy, ISSN 1103-8128, E-ISSN 1651-2014Article in journal (Refereed) Published
Abstract [en]

Background: There is a need for an instrument to measure participation and independence in children with disabilities. FUNDES-Child-SE has its origin in the participation questionnaire Child and Adolescent Scale of Participation. Aims: Test the psychometric properties of internal consistency and test-retest reliability. Material and methods: This cross-sectional study included caregivers of 163 children with disability aged 6–18 years, 59 of whom were also included in the test-retest study. Descriptive statistics were used to evaluate the proportions of valid ratings. Internal consistency and test-retest reliability were tested through Cronbach’s alpha and the intra-class correlation coefficient. Results: The amount of not relevant/not applicable ratings was substantial but varied between items and subdomains. Internal consistency was acceptable (0.8–0.95), and the test-retest was marginal to excellent (0.73–0.95). Conclusions: The reliability together with the content validity support the use of the FUNDES-Child-SE to measure participation and independence in children with disabilities. However, results should be interpreted with caution due to the small sample size and possible selection bias. Modifications to reduce the not relevant/not applicable responses should be investigated together with the instrument’s responsiveness. Significance: FUNDES-Child-SE can be used to facilitate a discussion of participation and independence and to plan interventions in a habilitation setting. 

Place, publisher, year, edition, pages
Taylor and Francis Ltd. , 2023.
Keywords [en]
Habilitation, internal consistency, psychometric, rehabilitation, test-retest
National Category
Public Health, Global Health and Social Medicine
Identifiers
URN: urn:nbn:se:mdh:diva-63958DOI: 10.1080/11038128.2023.2237214ISI: 001044221300001PubMedID: 37552981Scopus ID: 2-s2.0-85166914753OAI: oai:DiVA.org:mdh-63958DiVA, id: diva2:1788394
Available from: 2023-08-16 Created: 2023-08-16 Last updated: 2025-10-10Bibliographically approved
In thesis
1. Exploring contexts for participation in daily and physical activities among adolescents with and without disabilities
Open this publication in new window or tab >>Exploring contexts for participation in daily and physical activities among adolescents with and without disabilities
2025 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Participation, encompassing both attendance and involvement in daily and physical activities, is vital for the development and health of children and adolescents. Combinations of activities, places, people, objects, and time create contexts for participation. Participation varies with disabilities, socioeconomic status, gender, and age, factors which individually or collectively interact with these contexts. While assessments of participation commonly focus on activities, it is necessary to understand the contexts to promote participation. It remains unclear which contexts for daily activities are assessed by the Swedish participation instrument FUNDES-Child-SE, and how participation in moderate to vigorous physical activity (MVPA) contexts is distributed and shaped among adolescents. Therefore, this thesis aims to explore contexts for participation in daily activities, and the patterns and conditions for adolescents’ participation in MVPA contexts.

Two studies were conducted and presented in four articles. In Study I, data from 163 caregivers of 6-18-year-olds with disabilities were analyzed. Exploratory and confirmatory factor analysis, and coefficient alpha, were used to assess the structural validity of the FUNDES-Child-SE and identify contexts for participation in daily activities. In Study II, data from 3494 adolescents were analyzed through cluster analysis and coincidence analysis to explore patterns of and conditions for participation in MVPA contexts of sports and physical exercise.

Study I found that FUNDES-Child-SE assesses participation in both informal (activities within and outside the home) and formal contexts (activities at school and in society). In Study II, two clusters characterized by participation in sports were associated with having a disability. Among older adolescents, most of the identified clusters were associated with sex, with female sex being linked to half of the non-participation clusters in MVPA. The conditions for the non-participation cluster in physical exercise differed for girls and boys. While socioeconomic status was a key condition for girls, boys had several interrelated conditions for belonging to this cluster.

The discussion focuses on access to contexts through accommodation and affordability. To facilitate participation in formal contexts such as sports, adolescents with disabilities may need accommodations including aids, organizational adaptations, and peer support. Organizational adaptations and peer support may also accommodate girls’ participation. The influence of socioeconomic status on girls’ participation in MVPA may be due to gender stereotypes affecting affordability. Researching contexts for organized activities is complex, as these activities may be inseparable from other contextual factors such as people or places. 

In conclusion, this thesis emphasizes the importance of considering contexts broadly to promote adolescents' participation in daily and physical activities. Facilitating access and participation involves more than simply focusing on the activities. Future research should employ interdisciplinary multi-method designs to further investigate the participation construct, to examine the sports and physical exercise contexts for MVPA more deeply, and to investigate the acceptability of MVPA contexts, specifically for adolescents with disabilities and for girls.

Place, publisher, year, edition, pages
Västerås: Mälardalens universitet, 2025
Series
Mälardalen University Press Dissertations, ISSN 1651-4238 ; 434
Keywords
Adolescents; Access; Context; Disability; Participation; Person-Oriented; Physical Exercise; Sports
National Category
Physiotherapy
Research subject
Physiotherapy
Identifiers
urn:nbn:se:mdh:diva-71243 (URN)978-91-7485-710-8 (ISBN)
Public defence
2025-06-13, Beta och digitalt via Zoom, Mälardalens universitet, Västerås, 09:15 (English)
Opponent
Supervisors
Available from: 2025-04-23 Created: 2025-04-23 Last updated: 2025-10-10Bibliographically approved

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Gothilander, JenniferUllenhag, Anna

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