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  • 1.
    Beyermann, Alexandra
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Asp, Margareta
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Godskesen, Tove
    Palliative Research Centre, Department of Health Care Sciences, Marie Cederschiöld University, Stockholm, Sweden; Centre for Research Ethics & Bioethics, Department of Public Health and Caring Sciences, Uppsala University, Uppsala, Sweden.
    Söderman, Mirkka
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Nurses’ challenges when supporting the family of patients with ALS in specialized palliative home care: A qualitative study2023In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 18, no 1, article id 2238984Article in journal (Refereed)
    Abstract [en]

    Purpose: Being a family member to someone who has amyotrophic lateral sclerosis (ALS) is demanding and often requires sacrificing a lot. Family members can experience fatigue, anxiety, guilt and need support. The aim was to explore registered nurses’ (RNs’) experiences of providing support to the families of patients with ALS within specialized palliative home care (SPHC).

    Methods: A qualitative explorative design. Interviews were conducted with RNs (n = 11) from five SPHCs in Sweden and analysed using qualitative content analysis.

    Results: The results emerged in the following categories:”To support in an increasingly difficult everyday life”, based on the sub-categories: “Creating a trusting relationship”, “Balancing between the needs of patients and their families”, and “Sharing knowledge about dying to the families”;”To support in emotionally challenging situations”, based on the sub-categories: “Harbouring family members’ difficult feelings”, “Providing support even though the situation is unpleasant” and “Being able to give support by receiving confirmation and support from others”.

    Conclusions: RNs working in SPHC have an important role in providing support in several ways to the families of patients with ALS, through facilitating their everyday life and giving emotional support when needed, based on the needs of both patients and the families.

  • 2.
    Gusdal, Annelie K
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Söderman, Mirkka
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Pettersson, Tina
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Kaup, Jaana
    Mälardalen University, School of Health, Care and Social Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Healthcare and social care professionals’ experiences of respite care: a critical incident study2024In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 19, no 1Article in journal (Refereed)
    Abstract [en]

    IntroductionAging in place is favoured among older persons and supported by research in Sweden, although it poses challenges for overburdened informal caregivers. While respite care can offer support, its accessibility is hindered by organizational challenges and informal caregivers' delays in using it. The experiences of informal caregivers are well-studied, but the professionals' experiences of respite care quality and critical incident management are underexplored.AimTo explore professionals' experiences of critical incidents in respite care, consequences for the persons being cared for, and strategies to manage critical incidents.Materials and methodsA qualitative, critical incident technique was used, and three group interviews with a total of 16 professionals were conducted.ResultsBarriers to quality respite care included communication gaps during care transitions, environmental shortcomings in respite care facilities, lack of support for informal caregivers, and inadequacies in respite care decisions. Strategies to manage critical incidents included individualized care, continuity and communication in care transitions, a conducive environment, support for informal caregivers, and care professionals' positive approach.ConclusionsThe study emphasizes the need for focused efforts on communication, continuity, and a supportive environment. Addressing identified challenges and applying suggested strategies will be key to maximizing the potential of respite care as a vital support for care recipients and their informal caregivers.

  • 3.
    Gustafsson, Lena-Karin
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Bondesson, Anna
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Pettersson, Tina
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Söderman, Mirkka
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Dilemmas in rehabilitation and patient strategies in an intensive home intervention: a follow-up study2023In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 18, no 1, article id 2253001Article in journal (Refereed)
    Abstract [en]

    Background The original project, where older persons received reablement performed by an interprofessional team showed success factors for IHR. However, since there is a lack of knowledge about why some persons do not recover despite receiving IHR, this study follows up patients' experiences of IHR.Aim To describe older persons' perceived dilemmas in the reablement process within the framework of IHR.Method 11 CIT interviews with participants who have previously received IHR, were analysed, interpreted and categorized according to CIT. The study was approved by the Swedish Ethical Review Authority.Results The results showed disease-related dilemmas, fatigue or pain so that participants could not cope with the prescribed exercises. New diseases appeared, as well as medication side effects made exercising difficult, and painkillers became a prerequisite for coping with IHR. Low self-motivation and mistrust towards the staff emerged like lack of trust due to otherness such as sex, cultural background, or language also became critical.Conclusions Interventions that consider individual- and contextual dilemmas are very important. By recognizing critical situations, this study can work as a basis of evidence to further develop interventions for older people living in their own homes and to ensure them to stay there.

  • 4.
    Gustafsson, Lena-Karin
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Söderman, Mirkka
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Bondesson, Anna
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Pettersson, Tina
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Kaup, Jaana
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    HEMMA projektet - om äldres förutsättningar för kvarboende2023Report (Other academic)
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    fulltext
  • 5.
    Gustafsson, Lena-Karin
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Söderman, Mirkka
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Bondesson, Anna
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Pettersson, Tina
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Östlund, Gunnel
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Gusdal, Annelie K
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Växelvård idag och i framtiden2023Report (Other academic)
    Download full text (pdf)
    fulltext
  • 6.
    Pietilä Rosendahl, Sirpa
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Söderman, Mirkka
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Mazaheri, Monir
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare. Faculty of Nursing and Midwifery, Tehran University of Medical Sciences, Tehran, Iran.
    Immigrants with dementia in Swedish residential care: An exploratory study of the experiences of their family members and nursing staff2016In: BMC Geriatrics, ISSN 1471-2318, E-ISSN 1471-2318, Vol. 16, no 18Article in journal (Refereed)
    Abstract [en]

    Background

    Worldwide, there is a growing population of older people who develop dementia in a country other than that of their origin. When their dementia has reached an advanced stage, residential care is most often needed. People with dementia in Sweden are often cared for in group homes. For immigrants, this may mean a linguistically challenging care environment for both healthcare staff and the patients’ family members.

    The aim of this study was to explore and describe the experiences of family members and professional caregivers regarding the care provided to immigrants with dementia in group homes in Sweden.

    Methods

    An exploratory, descriptive study with a qualitative approach was chosen. In-depth semi-structured interviews were conducted with nine professional caregivers and five family members of people with dementia with Finnish, Estonian, Hungarian and Ingrian backgrounds; all were chosen purposefully. All people with dementia had lost their Swedish language skills as their second language. The data was analysed using qualitative content analysis.

    Results

    Three main categories and seven subcategories were identified. The first main category: A new living situation comprised the subcategories: adjusting to new living arrangements and expectations regarding activities and traditional food at the group home, the second main category: Challenges in communication with the subcategories: limited communication between the immigrant with dementia and the Swedish-speaking nursing staff and the consequences of linguistic misunderstandings and nuanced communication in a common language and the third main category: The role of the family member at the group home with the subcategories: a link to the healthy life story of the family member with dementia andan expert and interpreter for the nursing staff.

    Conclusions

    The family member played a crucial role in the lives of immigrants with dementia living in a group home by facilitating communication between the nursing staff and the PWD and also by making it possible for PWD to access the cultural activities they wanted and which professional caregivers were either not able to recognise as needed or could not deliver.

  • 7.
    Söderman, Mirkka
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Intervention studies regarding physicians’ sickness certification practice – a scoping review2021Conference paper (Refereed)
  • 8.
    Söderman, Mirkka
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Långvarig cancerrelaterad smärta2022In: Långvarig smärta ur vårdande perspektiv / [ed] Helena Lööf, Studentlitteratur AB, 2022, 1, p. 157-174Chapter in book (Other academic)
  • 9.
    Söderman, Mirkka
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Oncologist’s experiences of sickness certification of patients: a nationwide survey2019Conference paper (Refereed)
  • 10.
    Söderman, Mirkka
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    POSITIVE ENCOUNTERS WITH HEALTHCARE AMONG WOMEN SICKNESS ABSENT WITH BREAST CANCER OR OTHER DIAGNOSES2017Conference paper (Refereed)
  • 11.
    Söderman, Mirkka
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Positive encounters with healthcare among womensickness absent with breast cancer or other diagnoses2017Conference paper (Refereed)
  • 12.
    Söderman, Mirkka
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Women’s experiences of encounters related to work with healthcare after breast cancer surgery and its association with sickness absence; a prospective two-year follow up2018Conference paper (Refereed)
  • 13.
    Söderman, Mirkka
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Bondesson, Anna
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Pettersson, Tina
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    “Intensive-Home-Rehabilitation” Intervention for Older Persons: A Follow-Up Study of Team Members’ Perceptions2023In: Journal of Multidisciplinary Healthcare, ISSN 1178-2390, E-ISSN 1178-2390, Vol. 16, p. 2207-2216Article in journal (Refereed)
    Abstract [en]

    Background: Reablement as a concept includes a health-promoting perspective with the goal of strengthening health and the ability to perform and participate in daily activities, a broader perspective than in general home care and rehabilitation. Reablement interventions have shown to be both more effective and to a greater extent improve the function and health-related quality of life of older persons when compared to traditional home-based care. Success factors for intensive-home-rehabilitation (IHR), an intervention based on the reablement concept, have been described earlier; however, there is a lack of knowledge about why some persons do not recover despite receiving IHR. Aim: The aim was to shed light on the older persons’ conditions during IHR from the perspective of the rehabilitation team members and to describe obstacles to recovery. Methods: Qualitative analysis of health and care records of persons (65+) who received IHR (n=19) performed by an interprofes-sional team. Results: The analysis revealed various problematic situations, dilemmas, that occurred in the older persons’ lives during IHR, as well as their consequences and the strategies employed by the older persons as a result. IHR aspects perceived as successful by the older persons also emerged, as well as differences in experiences of the physical and mental aspects of the IHR. Analysis also revealed reasons why the IHR might be experienced as broadly successful. Conclusion: The older persons seemed to be satisfied with IHR and achieved their goals; however, some seemed to need more time to reach their goals. Background factors such as having additional diagnoses and living alone might affect the rehabilitation process. Implication for Practice: The study provides knowledge regarding the importance of IHR for the recovery process for the increasing numbers of older persons, which might also be useful in other patient groups requiring otherwise long-term rehabilitation and recovery such as after covid-19 infection. 

  • 14.
    Söderman, Mirkka
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Older persons’ experiences of intensive home rehabilitation: a follow-up study of the interventio2022Conference paper (Refereed)
  • 15.
    Söderman, Mirkka
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Respite care for ageing in dignity when suffering from dementia - a interdisciplinary mixed method project2023Conference paper (Refereed)
  • 16.
    Söderman, Mirkka
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    The variety of dilemmas in the rehabilitation process and the older persons' strategies to face them – A follow up study of a IHR intervention2023Conference paper (Refereed)
  • 17.
    Söderman, Mirkka
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Lööf, Helena
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Återhämtningsprocessen vid långvarig smärta2022In: Långvarig smärta ur ett vårdande perspektiv / [ed] Helena Lööf, Studentlitteratur AB, 2022, p. 175-192Chapter in book (Other academic)
  • 18.
    Söderman, Mirkka
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Pietilä Rosendahl, Sirpa
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Caring for the ethnic elders suffering from dementia – experiences of nursing staff2014In: Caring for the ethnic elders suffering from dementia – experiences of nursing staff, 2014Conference paper (Refereed)
    Download (pdf)
    fulltext
  • 19.
    Söderman, Mirkka
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare. Malardalen Univ, Sch Hlth Care & Social Welf, Box 325, SE-63105 Eskilstuna, Sweden.;Karolinska Inst, Dept Clin Neurosci, Div Insurance Med, SE-17177 Stockholm, Sweden..
    Pietilä Rosendahl, Sirpa
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare. Malardalen Univ, Sch Hlth Care & Social Welf, Box 325, SE-63105 Eskilstuna, Sweden.;Univ Skovde, Sch Hlth & Educ, Box 408, SE-54128 Skovde, Sweden..
    Sallstrom, Christina
    Karlstad Univ, Dept Hlth Sci, Fac Hlth Sci & Technol Karlstad, Sweden..
    Caring and Uncaring Encounters between Assistant Nurses and Immigrants with Dementia Symptoms in Two Group Homes in Sweden: an Observational Study2018In: Journal of Cross-Cultural Gerontology, ISSN 0169-3816, E-ISSN 1573-0719, Vol. 33, no 3, p. 299-317Article in journal (Refereed)
    Abstract [en]

    Background: The total number of people with dementia symptoms is expected to double every 20years and there will also be an increase in the number of older immigrants in several countries. There are considerable deficiencies in the present knowledge of how to conduct well-functioning health care for immigrants with dementia symptoms. The aim of this study was to explore caring and uncaring encounters between assistant nurses and immigrants in two group homes for persons with dementia symptoms in Sweden: a Finnish-speaking as well as a Swedish-speaking context. In addition, this study aims to describe how caring and uncaring encounters are manifested in these two contexts according to Halldorsdottir's theory of Caring and Uncaring encounters. Method: Descriptive field notes from 30 separate observations were analyzed using qualitative deductive content analysis. Results: The main category caring encounters focused on reaching out to initiate connection through communication, removing masks of anonymity by acknowledging the unique person, acknowledgment of connection by being personal. Reaching a level of truthfulness by being present and showing respect, raising the level of solidarity by equality and true negotiation of care, based on the residents' needs. The main category, uncaring encounters, focused on disinterest in and insensitivity towards the other, coldness in the connection and lack of humanity in care situations. The observations showed that caring encounters occurred more in the Finnish-speaking context and uncaring encounters more often in the Swedish context. Conclusion: Encounters could be caring, uncaring, and carried out using a person-centered approach. Communication and relationships could be facilitated using the same language but also through learning to interpret residents' needs and desires.

  • 20.
    Söderman, Mirkka
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Rosendahl, Sirpa
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Caring for the ethnic elders living with dementia – experiences of nursing staff2016In: Journal of Cross-Cultural Gerontology, ISSN 0169-3816, E-ISSN 1573-0719, Vol. 31, no 3, p. 311-326Article in journal (Refereed)
    Abstract [en]

    The total number of persons living with dementia is estimated to double every 20 years and ageing migrant populations are growing in several countries. There are gaps in the health and social care of people from other countries, regardless of the efforts made when someone has a dementia diagnosis; similarly, receiving care in sheltered accommodation is less common. The aim of this study was to explore and describe the nursing staff’s experiences of caring for non-Swedish speaking persons living with dementia in a Finnish speaking group home in relation to a Swedish speaking group home in Sweden. 27 qualitative semi-structured interviews were analysed using qualitative content analyses. The first main category, “communication”, concentrated on language abilities and deficiencies, non-verbal language, highlighting the consequences of not understanding and the benefits of a common language. The second main category, “culturally oriented activities”, focused on being served traditional food, celebrating holidays at the group home, the importance of traditions and the importance of familiar music as cultural elements. The Swedish speaking nursing staff could provide qualitative and equitable care, but the challenge was greater for them than for the bilingual nursing staff who spoke the same language as the residents.

  • 21.
    Söderman, Mirkka
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Rylander, Annelie
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Brytpunktssamtal i hemmet2022In: Omvårdnad i hemmet vid komplexa vårdsituationer / [ed] Lena-Karin Gustafsson; Mirkka Söderman, Studentlitteratur AB, 2022, 1, p. 105-127Chapter in book (Other academic)
  • 22.
    Söderman, Mirkka
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Rylander, Annelie
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Omvårdnad av personer med cancer2022In: Omvårdnad i hemmet vid komplexa vårdbehov / [ed] Lena-Karin Gustafsson; Mirkka Söderman, Studentlitteratur AB, 2022, 1, p. 207-236Chapter in book (Other academic)
  • 23.
    Söderman, Mirkka
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Rylander, Annelie
    Mälardalen University, School of Health, Care and Social Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    The path of recovery towards a new way of living among cancer survivors2022Conference paper (Refereed)
  • 24.
    Söderman, Mirkka
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Wennman-Larsen, A
    Karolinska Inst, Dept Clin Neurosci, Div Insurance Med, S-17177 Stockholm, Sweden.
    Hoving, J L
    Karolinska Inst, Dept Clin Neurosci, Div Insurance Med, S-17177 Stockholm, Sweden.
    Alexanderson, L
    Karolinska Inst, Dept Clin Neurosci, Div Insurance Med, S-17177 Stockholm, Sweden.
    Friberg, E
    Karolinska Inst, Dept Clin Neurosci, Div Insurance Med, S-17177 Stockholm, Sweden.
    Interventions regarding physicians' sickness certification practice: a systematic literature review with meta-analyses2022In: Scandinavian Journal of Primary Health Care, ISSN 0281-3432, E-ISSN 1502-7724, Vol. 40, no 1, p. 104-114Article in journal (Refereed)
    Abstract [en]

    Objective A variety of interventions aiming to influence physicians' sickness certification practice have been conducted, most are, however, not evaluated scientifically. The aim of this systematic literature review was to obtain updated knowledge about interventions regarding physicians' sickness certification practice and to summarize their possible effects, in terms of sickness absence (SA) or return to work (RTW) among patients. Methods We searched PubMed and Web of Science up through 15 June 2020 and selected peer-reviewed studies that reported effects of controlled interventions that aimed to improve physicians' sickness certification practice and used SA or RTW among patients as outcome measures. Meta-analyses were conducted using random-effect models. Results Of the 1399 identified publications, 12 studies covering 9 interventions were assessed as relevant and included in the review. Most (70%) were from the Netherlands, two had a controlled, and seven a randomized controlled study design. All interventions included some type of training of physicians, and two interventions also included IT-support. Regarding the outcomes of SA/RTW, 30 different effect measures were used. In the meta-analyses, no statistically significant effect in favor of the interventions was observed for having any RTW (i.e. first, partial, or full) nor full RTW. Conclusions The individual studies showed that physicians' sickness certification practice might be influenced by interventions in both the intended and non-intended direction, however, no statistically significant effect was indicated by the meta-analysis. The included studies varied considerably concerning intervention content and effect measures.

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