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  • 1.
    Frank, Catharina
    et al.
    Mälardalen University, School of Health, Care and Social Welfare.
    Asp, Margareta
    Mälardalen University, School of Health, Care and Social Welfare.
    Dahlberg, Karin
    Växjö University.
    Patient participation in emergency care. A phenomenographic analysis of caregivers´conceptions2009In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 18, no 18, p. 2555-2562Article in journal (Refereed)
  • 2.
    Frank, Catharina
    et al.
    Mälardalen University, School of Health, Care and Social Welfare.
    Asp, Margareta
    Mälardalen University, School of Health, Care and Social Welfare.
    Dahlberg, Karin
    School of Health Sciences and Social Work, Växjö University.
    Patient participation in emergency care- A phenomenographic study based on patients' lived experience2009In: International emergency nursing, ISSN 1755-599X, Vol. 17, no 1, p. 15-22Article in journal (Refereed)
    Abstract [en]

    International guidelines promote patient participation in health care. When patients participate in their care they experience greater satisfaction. Studies have shown that patients in emergency departments express dissatisfaction with their care, and it was therefore important to study how patients understand and conceptualize their participation. The aim of this study was to describe patients’ qualitatively different conceptions of patient participation in their care in an emergency department. Based on a lifeworld perspective, nine interviews were performed with patients in an emergency department. The phenomenographic analysis shows that participation by patients means contact with the emergency department staff in three categories of conceptions: being acknowledged; struggling to become involved; and having a clear space. The different conceptions of patient participation give us a deeper understanding of how patients may experience their care, and this result may provide a foundation for developing nursing practice and the quality of health care in line with international guidelines.

     

  • 3.
    Frank, Catharina
    et al.
    Mälardalen University, School of Health, Care and Social Welfare.
    Asp, Margareta
    Mälardalen University, School of Health, Care and Social Welfare.
    Fridlund, Bengt
    Hälsohögskolan, Jönköping.
    Baigi, Amir
    Halland County Council, Falkenberg, Sweden.
    Questionnarie for patient participation in emergency departments: development and psychometric testing2011In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 67, no 3, p. 643-651Article in journal (Refereed)
    Abstract [en]

    Aim The aim of the study was to develop and test the psychometric properties of a patient participation questionnaire in emergency departments.

     

    Background Patient participation is an important indicator of quality of healthcare. International and national health care policy guidelines promote patient participation. While patients cared for in emergency departments generally express dissatisfaction with their care, a review of the literature fails to reveal any scientifically tested research instruments for assessing patient participation from the perspective of patients.

     

    Methods A methodological study was conducted involving a convenience sample of 356 patients recently cared for in emergency departments in Sweden. Data was collected in 2008 and the analyses performed were tested for construct and criterion validity and also homogeneity and stability reliability.

     

    Results A 17- item questionnaire was developed. Two separate factor analyses revealed a distinct four- factor solution which was labelled: fight for participation, requirement for participation, mutual participation and participating in getting basic needs satisfied. Criterion validity presented showed 9 out of 20 correlations above 0.30 and of those 3 moderate correlations of 0.62, 0.63 and 0.70. Cronbach’s alpha coefficient ranged from 0.63 - 0.84 and test- retest varied between 0.59 and 0.93.

     

    Conclusion The results signify evidence of acceptable validity and reliability and the questionnaire makes it possible to evaluate patient participation in ED caring situations. In addition it produces data which is useable by a diverse range of healthcare professionals.

     

  • 4.
    Frank, Catharina
    et al.
    Mälardalen University, School of Health, Care and Social Welfare.
    Fridlund, Bengt
    Hälsohögskolan Jönköping.
    Baigi, Amir
    General Practice and Public Health, Halland County Council, Falkenberg, Sweden.
    Asp, Margareta
    Mälardalen University, School of Health, Care and Social Welfare.
    Patient participation in the emergency department: an evaluation using a specific instrument to measure patient participation (PPED2011In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 67, no 4, p. 728-735Article in journal (Refereed)
    Abstract [en]

    Aim:  This study aimed at evaluating patient participation from the perspective of patients who received care in emergency departments, with a separate examination of the relationship between participation and age, sex, education and priority level.

    Background: International and national guidelines encourage patient participation. High patient participation is required to ensure a high quality of care. No studies evaluating patient participation at an emergency department have been published.

    Methods: An evaluating study, with the Patient Participation Emergency Department questionnaire, was conducted at emergency departments in Sweden. A consecutive sample of 356 patients participated. Data was collected in 2008: participants were 49% women and with an average age of 56 years. The statistical methods used were Student’s t-test, one-way ANOVA and Spearman correlation.

    Results: The results revealed that patients experienced good requirement such as time and information for participation. Mutual participation demonstrated a reasonable level but patient participation is low in two dimensions (Fight for participation, Participation in getting basic needs satisfied). Young and well‑educated patients fought more to participate in their care and gained less attention for basic needs than older and less well‑educated patients.

    Conclusions: Patient participation in a mutual care situation between patients and healthcare professionals requires further improvement to ensure that patients are satisfied and do not have to struggle and fight in order to participate in their care.

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