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  • 1.
    Ramsten, Camilla
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Participation through ICT: – studies of the use and access to ICT for young adults with intellectual disability2018Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    The right to full participation in society is stated in law to ensure that vulnerable groups such as people with intellectual disability have the same rights and possibilities as the general population. Technological development has changed the conditions of participation in society, including the types of interactions, information and societal services. Many young adults with mild to moderate intellectual disability require support in daily life. In Sweden, this is provided by the government, and each municipality is responsible for the provision of social care for people with disability. The changes in society and technology require that the providers of social care adopt technologies to enable participation.

         The overall aim of the thesis was to identify the prerequisites for and aspects that enable the use of information and communication technology (ICT) and their effects on participation in daily life among young adults with mild to moderate intellectual disability (ID) resident in municipal disability services.

         Using a quantitative descriptive approach, this thesis starts by mapping the organizational support throughout the country. This is followed by three qualitative studies. Focus group interviews with staff in residential care were conducted and analysed in Study II (a narrative analysis) and Study III (a content analysis). These studies focused on staff perceptions of the use of ICT by these young adults and how staff’s way of work enabled or hindered ICT use by these young adults. Study IV included interviews of young adults with mild to moderate intellectual disability living in municipal residential care about their daily ICT use.

         The thesis findings show that the municipal organizations lack a comprehensive strategy of support for the use of ICT and instead trust staff to provide the needed support to the young adults in daily life situations. Staff members described the difficulties they encountered when providing this support for ICT, which were partly because of the lack of organizational resources. Despite these perceived problems, staff members displayed enthusiasm about introducing and supporting ICT use for young adults with mild to moderate ID if adequate resources would be provided by the organization. They described both positive and negative aspects of ICT use by these young adults in relation to service provision and the young adults’ private lives.

  • 2.
    Ramsten, Camilla
    et al.
    Mälardalen University, School of Health, Care and Social Welfare.
    Blomberg, Helena
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    “Not always having to be face-to-face” – using ICT for independence and participation in disability servicesManuscript (preprint) (Other academic)
    Abstract [en]

    Information and communication technology (ICT) has increased in importance for participation purposes. For young adults with mild to moderate intellectual disability (ID), staff are key support people, especially as difficulties with accessing and using ICT can hinder participation. The aim of the study is to reveal staffs’ way of work with young adults’ with mild to moderate ID independence and participation through ICT. A narrative analysis and interaction theory are used to analyse focus group interviews with staff in a residential care setting. The findings show that ICT is used to increase togetherness between the young adults and as a face-saving strategy that offers independence and can neutralise the asymmetric power relations. In addition, the lack of organisational resources appears to hinder the introduction and use of ICT for participation purposes.

  • 3.
    Ramsten, Camilla
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Blomberg, Helena
    Mälardalen University, School of Health, Care and Social Welfare.
    Staff as Advocates, Moral Guardians and Enablers: Using ICT for Independence and Participation in Disability Services2019In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 21, no 1, p. 271-281Article in journal (Refereed)
  • 4.
    Ramsten, Camilla
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Martin, Lene
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Dag, Munir
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Marmstål Hammar, Lena
    Dalarna Univ, Falun, Sweden.
    A Balance of Social Inclusion and Risks: Staff Perceptions of Information and Communication technology in the Daily Life of Young Adults with Mild to Moderate Intellectual Disability in a Social Care Context2019In: Journal of Policy and Practice in Intellectual Disabilities, ISSN 1741-1122, E-ISSN 1741-1130, Vol. 16, no 3, p. 171-179Article in journal (Refereed)
    Abstract [en]

    Background: Information and communication technology (ICT) has increased in importance and facilitates participation in several life areas throughout society. However, young adults with mild to moderate intellectual disability make less use ICT than the general population. Disability services staff play a central role in supporting and enabling service users in daily life, and their perceptions of ICT are important to their role in service provision.

    Aim: To describe staff perceptions of the role of ICT and how it affects daily life in young adults with mild to moderate intellectual disability living in residential homes.

    Method: Focus group interviews and individual interviews were conducted with staff working in residential homes in which young adults with mild to moderate intellectual disability live. All materials were transcribed verbatim and analysed using latent content analysis.

    Findings: Staff perceived ICT and, more specifically, the Internet as being supportive of both daily life and social relationships of these young adults, but they also viewed ICT as posing social risks. Perceptions of and support for ICT were related to staff perceptions about what is appropriate and manageable in relation to an individual resident’s functioning level. Staff members also considered the views of parents about appropriate content when providing support.

    Discussion: Staff in residential homes for young adults with mild to moderate intellectual disability use their implicit moral judgement about the use of ICT by residents. Their enablement of and support for ICT are not primarily based on the service user’s wishes or interests. This finding implies a risk that the organization of a conflict-free service provision is a higher priority than service users’ participation in social life.

  • 5.
    Ramsten, Camilla
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Martin, Lene
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Dag, Munir
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Marmstål Hammar, Lena
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Information and communication technology use in daily life among young adults with mild to moderate intellectual disabilityIn: Journal of Intellectual Disabilities, ISSN 1744-6295, E-ISSN 1744-6309Article in journal (Refereed)
    Abstract [en]

    Information and communication technology (ICT) increases participation in life activities, and young adults are frequent users. Young adults with intellectual disability (ID) do not use ICT as much as their peers, and little is known about how ICT is used by young adults with ID. This study describes the use of ICT from the perspective of young adults with mild to moderate ID in a municipal social care context. Semi-structured interviews were used to collect information from 11 young adults with mild-to-moderate ID living in residential care and analysed using a content analysis. ICT was used for family relationships, daily support, interactions based on interests and amusement, and as support for offline activities. Family members were important providers of support for ICT use. Young adults with mild-to-moderate ID use ICT in their daily life. The social care context needs to be further investigated due to its influence on the young adults' access to ICT and need of support.

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