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  • 1.
    Anbäcken, Els-Marie
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Elfström, Magnus
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Zander, Viktoria
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Östlund, Gunnel
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    A holistic way ofworking interprofessionally in home care with and for older people2016Conference paper (Refereed)
  • 2.
    Gustafsson, Christine
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Snellman, Ingrid
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Trust leading to hope - the signification of meaningful encounters in Swedish healthcare. The narratives of patients, relatives and healthcare staff2013In: International Practice Development Journal, ISSN 2046-9292, Vol. 3, no 1, p. 1-13Article in journal (Refereed)
    Abstract [en]

    Background: The fact that patients and relatives experience poor healthcare encounters is evident in the number of complaints to patients’ advisory committees, and from studies and statistics. Looking at ‘the other side of the coin’, research into good caring encounters experienced as meaningful encounters in healthcare is scarce.

    Aim: To illuminate the signification of meaningful encounters in healthcare. 124 narratives from patients, relatives and healthcare staff regarding experiences of meaningful encounters in Swedish healthcare were analysed using a phenomenological hermeneutic research method.

    Conclusions: The results indicate that a meaningful encounter means gratefulness, is founded on trust, cooperation and courage, and results in self-trust through wellbeing, increased understanding and life-changing insights. The encounters have given insight into, and increased understanding of, the patient’s own life, the families’ lives, and/or healthcare professionals’ lives. With this, and awareness of the importance and power of meaningful encounters, healthcare staff might use a meaningful encounter as a powerful instrument in caring.

    Implications for practice:

    • For patients and relatives, trust derived from meaningful encounters in healthcare leads to self-trust
    • Caring within healthcare consisting of meaningful encounters, ‘the other side of the coin’ gives important knowledge that could facilitate improvements in healthcare staff’s encounters with patients and relatives, and also enrichment in their own professional development
    • Increased understanding and awareness of the power of meaningful encounters can be discussed in terms of patient safety

  • 3.
    Gustafsson, Christine
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Snellman, Ingrid
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Betydelsefulla möten i vården: Du kan göra skillnad2015 (ed. 1)Book (Other (popular science, discussion, etc.))
  • 4. Gustafsson, Lena-Karin
    Avskurenhet och gemenskap2010In: Vårdande vid psykisk ohälsa: på avancerad nivå / [ed] Lena Wiklund Gustin, Lund: Studentlitteratur , 2010, 1, , p. 32:432p. 181-198Chapter in book (Other (popular science, discussion, etc.))
    Abstract [sv]

    När en person befinner sig i ett psykotiskt lidande så kan detta också vara förknippat med att vara avskuren från andra människor. Även när man är tillsammans med andra så kan upplevelsen av avskurenhet vara stark. Detta syns också i det vardagliga språket, där vi ibland kan tala om en psykotisk person – eller en människa som i sin tankevärld är någon annan stans – i termer av att ”vara på en annan planet”. För vårdaren innebär det en stor utmaning att trots delvis skilda världar, där patientens verklighet ibland kan te sig helt oförståelig, skapa förutsättningar för en god vård. Vårdaren behöver utveckla en etisk hållning med respekt för patientens ”annanhet” och unika upplevelser för att på ett respektfullt vis närma sig patienten och därmed få en grogrund för gemenskap. Denna vårdgemenskap kan skapa möjligheter till lindrat lidande och stödja patienten på resan ut ur avskurenheten.

    Att genomgå ett psykiskt lidande ställer ofta tillvaron på sin spets. Livet blir aldrig mer detsamma, även om de psykiska symtomen avklingar. Människan kan därför behöva försonas med livet som det blivit, och också med att livet är ständigt föränderligt, och försoningen kan här liknas vid ett pusselbyggande. Denna process är ofta en existentiell utmaning för patienten, och också vårdaren utmanas i mötet med patientens lidande. Trots att vårdaren aldrig kan försona patienten – försoningen är på det viset patientens ”egen” process – så kan vårdaren ändå vara ett stöd och underlätta detta arbete för patienten.

  • 5.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare.
    Försoning2012In: Vårdvetenskapliga begrepp i teori och praktik / [ed] Lena Wiklund Gustin och Ingegärd Bergbom, Lund: Studentlitteratur, 2012, 1:1, p. 472-485Chapter in book (Other academic)
  • 6.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare.
    Försoning: ur ett vårdvetenskapligt perspektiv2008Doctoral thesis, monograph (Other academic)
    Abstract [en]

    The main aim of the research was to, from a caring perspective, lighten up the meaning of reconciliation in relation to the human health and suffering. The perspective is based on caring science standpoints related to health and suffering. Main standpoints for the research are that health is more than absence of illness, that health meaning is wholeness and holiness, that suffering is an inseparable part of life and that suffering and health are each other’s prerequisites. The choice of perspective is also based on the clinical caring science thoughts of base research that has its main task to form ideals for caring. Base research in clinical caring science aim in the first instance to the development of knowledge around health, suffering, caring and understanding of these phenomena in clinical settings.

    The overarching research questions were:   That is the meaning of reconciliation? which was followed by: What is reconciliation related to health and suffering? The thesis is built around four sub-studies that all have differences in relation to material and methods. The overall methodological approach has its standpoint in hermeneutics inspired by Paul Ricoeur. The first sub-study is a meta-synthesis of current research that touches on reconciliation. While the second sub-study is a concept analysis of Swedish dictionaries. The third sub-study consists of fiction texts that lighten the meaning of reconciliation. The process of interpretation in the third sub-study has followed the direction of phenomenological hermeneutics. Fourth sub-study is empiric and focus narratives about reconciliation. These reconciliation narratives, told by eight women with experience of grief, has been interpreted with a hermeneutic narrative approach.

    Finally a frozen picture has been created from the understanding in front of the text when the different sub-studies of the thesis have met dialectically with the theoretical assumptions. The picture involves a clarification of the meaning of reconciliation in relation to the human health and suffering. In the picture two forms of meaning appears; The outer forms of the meaning of reconciliation illustrating its shape and position in relation to health and suffering. Reconciliation has a progressive form that means a changeover from an experience of parents to an experience of wholeness but also a whole creating process between past, present and builds a link to the future. The inner forms of the meaning of reconciliation elucidate the inner relation to health and suffering. The meaning of reconciliation can be seen as a merge who shelter contrasts that earlier has been separated and impossible to reconcile in human as a heterogenic synthesis.

  • 7.
    Gustafsson, lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare.
    Maintaining patient´s dignity in forensic care:: The chalange of maintaining patient´s dignity in clinical caring situations2011Conference paper (Refereed)
    Abstract [en]

    Introduction: Human dignity is one of the basic attributes caring ethics and pushed to its limits in the context of forensic care. We must recognise the importance of increased understanding for maintaining patient's dignity to expand earlier formulated knowledge about caring ethics. Illuminations of this topic can create conditions for changing and develop care and make human's dignity and caregivers preservation of dignity evident. The aim in this study was to illuminate the meaning of maintenance of patient's dignity in forensic care.Methods: A qualitative explorative design with a hermeneutic narrative approach was used to analyse and interpret focus groups interviews with caregivers in forensic care. Caring theory about dignity as an important concept within caring ethics provided the point of departure for the analysis. The study was approved by an ethical research committee. Findings: revealed different themes that gave light to the meaning of the phenomena. In the text the meaning of maintenance of patient's dignity was protection and respect, but also brotherly humanity. The themes protection and respect had an outer and inner form. Protection was shown outwards as cover or screen the patient and to guard against danger. The inner form of protection was described as to protect the patients' needs and to arouse the patients' protection recourses. The theme respect was shown outwards as taking the patient seriously and to show others that patient were someone to count with, inwards as teaching patient create respect and teaching patient to expect respect from others being a worthy person. The meaning of maintenance of dignity was also to meet patient with human brotherhood, to do "the little extra" and to show human similarity.Conclusions: Understanding the meaning of maintenance of patient's dignity in forensic care will enable nurses to plan and provide professional care, based on caring science. 

  • 8.
    Gustafsson, Lena-Karin
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Mattsson, Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Dubbelman, Kerstin
    Snöljung, Åsa
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Aspects of nursing with evidence-base when nursing frail older adults: a phenomenographic analysis of interviews with nurses in municipal care2014In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, ISSN 0283-9318, Vol. 28, no 4, p. 793-801Article in journal (Refereed)
    Abstract [en]

    In earlier research as well as in political discussion and documents, the topic of evidence has been highlighted as one of the most important concerns in nursing care. This study focuses on understanding what lies behind nurses' ways of acting regarding evidence-based nursing through an illumination of the way they perceive the phenomena.AIM: The aim was to identify and describe the different ways municipal care nurses perceive aspects of working with evidence when nursing frail older adults.METHODS: An explorative design with a phenomenographic approach based on interviews with nurses working with home-based care within the municipality was used in order to gain understanding of nurse's perceptions of the phenomena.RESULTS: Findings revealed that the nurses perceived a variety of aspects when working with evidence when nursing frail older people. Aspects with a spectra of different perceptions shown in the analysis were as follows: Evidence-based nursing as a desired intention/mission, lack of practical supporting structures to apply evidence, lack of confidence in own capacity to apply evidence and a belief that it will work anyway.CONCLUSIONS: Findings reveal that it is a challenge to implement research both on an individual as well as on an organisational level. Understanding the contextual perceptions of evidence by nurses can cast light on the barriers as well as the prerequisites of working with evidence while caring for frail older adults in municipal care.

  • 9.
    Gustafsson, Lena-Karin
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Snellman, Ingrid
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Gustafsson, Christine
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    The meaningful encounter: Patient and next of kin stories about their experience of meaningful encounters in health care2013In: Nursing Inquiry, ISSN 1320-7881, E-ISSN 1440-1800, Vol. 20, no 4, p. 363-371Article in journal (Refereed)
    Abstract [en]

    This study focuses on the meaningful encounters of patients and next of kin, seen from their perspective. Identifying the attributes within meaningful encounters is important for increased understanding of caring and to expand and develop earlier formulated knowledge about caring relationships. Caring theory about the caring relationship and provided a point of departure for the study. The aim of this study was to illuminate the meaningful encounter in health care contexts narrated by patients and next of kin. A qualitative explorative design with a hermeneutic narrative approach was used to analyze and interpret the written narratives. Phases were: Naïve interpretation, structure analysis on two different levels a) analysis of narrative structure b) analysis of deep structure through metaphors and finally a dialectic interpretation. In the narratives the meaning of the meaningful encounter was sharing, a nourishing fellowship, common responsibility and coming together experienced as safety and warmth and gives, by extension, life changing moments, a healing force and dissipated insight. The meaningful encounter can be seen as a complex phenomenon that has different attributes. Understanding the meaningful encounter will enable nurses to plan and provide professional care, based on caring science focusing on patient and next of kin experience.

  • 10.
    Gustafsson, Lena-Karin
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Stenberg, Maja
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Crucial contextual attributes of nursing leadership towards a care ethics2017In: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, Vol. 24, no 4, p. 419-429Article in journal (Refereed)
    Abstract [en]

    Background: It is of importance to understand and communicate caring ethics as a ground for qualitative caring environments. Research is needed on nursing attributes that are visible in nursing leadership since it may give bases for reflections related to the patterns of specific contexts. Aim: The aim of this study was to illuminate the meaning of crucial attributes in nursing leadership toward an ethical care of patients in psychiatric in-patient settings. Research design: The design of the study was descriptive and qualitative with a phenomenological hermeneutical approach. Participants and research context: The study comprised focus group interviews with nurses working in indoor psychiatric care who participated after giving informed consent. Ethical considerations: Since the topic and informants are not labeled as sensitive and subject to ethical approval, it is not covered by the ethics committee’s aim and purpose according to Swedish law. However, careful procedures have been followed according to ethics expressed in the Declaration of Helsinki. Findings: When identifying the thematic structures, analysis resulted in three major themes: To supply, including the following aspects: to supply evidence, to supply common space, and to supply good structures; To support, including the following aspects: to be a role model, to show appreciation and care, and to harbor; To shield, including the following aspects: to advocate, to emit non-tolerance of unethical behavior, and to reprove. Discussion: Leadership is challenging for nurses and plays an important role in ethical qualitative care. These findings should not be understood as a description about nurse manager’s role, which probably has different attributes and more focus on an organizational level. Conclusion: Making the understanding about crucial attributes explicit, the nurse may receive confirmation and recognition of crucial attributes for ethical care in order to move toward an ethical care. 

  • 11.
    Gustafsson, Lena-Karin
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Wigerblad, Åse
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Lindwall, Lillemor
    Department of Nursing Science, Karlstads universitet.
    Respecting dignity in forensic care: the challenge faced by nurses of maintaining patient dignity in clinical caring situations2013In: Journal of Psychiatric and Mental Health Nursing, ISSN 1351-0126, E-ISSN 1365-2850, Vol. 20, no 1, p. 1-8Article in journal (Refereed)
    Abstract [en]

    Introduction: We must recognise the importance of increased understanding for maintaining patient dignity to expand earlier formulated knowledge about caring ethics. Illuminations of this topic can create conditions for changing and developing care, as well as making caregivers’ preservation of dignity evident. The aim was to illuminate the meaning of maintenance of patient dignity in forensic care.

    Methods: A qualitative design with a phenomenological- hermeneutic approach was used to analyse and interpret focus group interviews with nurses in forensic care.

    Findings: In the text the meaning of maintenance of patient dignity was protection and respect but also brotherly humanity. Protection was shown outwards to cover or screen the patient and to guard against danger. The inner form was described as protecting the patients’ needs and arousing the patients’ protection resources. Respect was shown outwards to take the patient seriously and to show others that patients are to be reckoned with, inwards in teaching patients to create respect and in teaching patients to expect respect from others. Meeting patients with human brotherhood was shown in doing “the little extra” and demonstrating human similarity.

    Conclusions: The new understanding will enable nurses to plan and provide professional care, based on caring science.

  • 12.
    Gustafsson, Lena-Karin
    et al.
    Mälardalen University, School of Health, Care and Social Welfare.
    Wigerblad, Åse
    Mälardalen University, School of Health, Care and Social Welfare.
    Lindwall, Lillemor
    Karlstads universitet, avd för omvårdnad.
    Respecting dignity in psychiatric care:: Working Together for Health Security2012Conference paper (Refereed)
  • 13.
    Gustafsson, Lena-Karin
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Wigerblad, Åse
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Lindwall, Lillemor
    Karlstad University.
    Undignified care: Violation of patient dignity in involuntary psychiatric hospital care from a nurse's perspective2014In: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, Vol. 21, no 2, p. 176-186Article in journal (Refereed)
    Abstract [en]

    Patient dignity in involuntary psychiatric hospital care is a complex yet central phenomenon. Research is needed on the concept of dignity's specific contextual attributes since nurses are responsible for providing dignified care in psychiatric care. The aim was to describe nurses' experiences of violation of patient dignity in clinical caring situations in involuntary psychiatric hospital care. A qualitative design with a hermeneutic approach was used to analyze and interpret data collected from group interviews. Findings reveal seven tentative themes of nurses' experiences of violations of patient dignity: patients not taken seriously, patients ignored, patients uncovered and exposed, patients physically violated, patients becoming the victims of others' superiority, patients being betrayed, and patients being predefined. Understanding the contextual experiences of nurses can shed light on the care of patients in involuntary psychiatric hospital care.

  • 14.
    Gustafsson, Lena-Karin
    et al.
    Mälardalen University, School of Health, Care and Social Welfare.
    Wiklund-Gustin, Lena
    Mälardalen University, School of Health, Care and Social Welfare.
    Lindström, Unni Å
    Enheten för vårdvetenskap, Åbo Akademi, Finland.
    The meaning of reconciliation: Women’s stories about theirexperience of reconciliation with suffering from grief2011In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 25, no 3, p. 525-532Article in journal (Refereed)
    Abstract [en]

    Introduction: Grief can be seen as a form of suffering. In this study grief was not only defined as loss, but as the process of inner suffering caused of some kinds of loss. We must recognise the importance of increased understanding for patient reconciliation with grief to expand earlier formulated knowledge about health and suffering. The aim in this study was ti illuminate the meaning of reconciliation among women suffering from grief.

    Methods:A qualitative explorative design with a hermeneutic narrative approach was used to analyse and interpret the interviews. Caring theory abouth health, suffering and hermeneutical philosophy about understanding provided the point of departure for the analysis. The study was approved by an ethical research committé.

    Results:Findings reveal different plots that give light to the meaning of reconciliation in the different phases of analysis. In the Women´s narratives the meaning of reconciliation is a process to a new way of seeing, but also to opening and transition from the experience of grief and suffering to the experience of health and holiness.

    Conclusions: Reconciliation has a progressive form and the meaning of reconciliation cannot be seen as synonymous or homogenous but an understanding of reconciliation as a heterogenic synthesis of health and suffering. Understanding the reconciliation process will enable nurses to plan and provide professional care, based on caring science.

  • 15.
    Gustafsson, Lena-Karin
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Östlund, Gunnel
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Zander, Viktoria
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Elfström, Magnus
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Anbäcken, Els-Marie
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    ‘Best fit’ caring skills of an interprofessional team inshort-term goal-directed reablement: older adults’perceptionsIn: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712Article in journal (Refereed)
  • 16.
    Johansson-Pajala, Rose-Marie
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Jorsäter Blomgren, Kerstin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Fastbom, Johan
    Stockholm University, Stockholm.
    Martin, Lene
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Nurses' use of computerised decision support systems affects drug monitoring in nursing homes2017In: Journal of Nursing Management, ISSN 0966-0429, E-ISSN 1365-2834, Vol. 25, no 1, p. 56-64Article in journal (Refereed)
    Abstract [en]

    Aim: To describe variations in nurses' perceptions of using a computerised decision support system (CDSS) in drug monitoring. Background: There is an increasing focus on incorporating informatics into registered nurses' (RNs) clinical practice. Insight into RNs’ perceptions of using a CDSS in drug monitoring can provide a basis for further development of safer practices in drug management. Method: A qualitative interview study of 16 RNs. Data were analysed using a phenomenographic approach. Results: The RNs perceived a variety of aspects of using a CDSS indrug monitoring. Aspects of ‘time’ were evident, as was giving a ‘standardisation’ to the clinical work. There were perceptions of effects of obtained knowledge and ‘evidence’ and the division of ‘responsibilities’ between RNs and physicians of using the CDSS. Conclusion: The RNs perceived a CDSS as supportive in drug monitoring, in terms of promoting standardised routines, team-collaboration and providing possibilities for evidence-based clinical practice. Implications: Implementing a CDSS seems to be one feasible strategy to improve RNs’ preconditions for safe drug management. Nurse managers’ engagement and support in this process are vital for a successful result.

  • 17.
    Jonasson, Karin
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    You Live as Much as You Have Time To: The Experience of Patients Living with Hemodialysis2017In: Nephrology Nursing Journal : Journal of The American Nephrology Nurses Association, ISSN 1526-744X, E-ISSN 2163-5390, Vol. 44, no 1, p. 35-41Article in journal (Refereed)
    Abstract [en]

    Changes in their daily lives that patients endure because of hemodialysis are major and also essential so they can stay alive. The aim of this study was to describe changes in life for patients with renal failure undergoing hemodialysis. The study has a qualitative descriptive approach with a qualitative content analysis based on in-depth interviews with patients undergoing hemodialysis. Results show that life in hemodialysis is experienced as a transition from liberty to captivity, adjusting to the new life, and the new life moving towards reconciliation. This study shows that support towards reconciliation is crucial for patient health.

  • 18.
    Kumpula, Esa
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Ekstrand, P.
    Department of Health Sciences, Swedish Red Cross University College, Sweden.
    Nursing Staff Talk: Resource or Obstacle for Forensic Psychiatric Patient Care?2019In: Journal of Forensic Nursing, ISSN 1939-3938, E-ISSN 1556-3693, Vol. 15, no 1, p. 52-59Article in journal (Refereed)
    Abstract [en]

    Although forensic psychiatric care is located at the intersection of health care and the Swedish legal system, nursing research has not yet evaluated how language is context bound or its consequences for understanding patient care. The aim of this study was to explore how nursing staff talk about patient care in Swedish forensic psychiatric care and the implications for the care given to patients. The theoretical framework is based on social constructionism and sheds light on how language use can be understood as a social action. Twelve interviews were conducted with nursing staff working in forensic psychiatric settings. The questions focused on patient care in relation to activities, security, relationships with patients, and rules and routines. The results show that nursing staff assignments are encouraging them to use various interpretative repertoires to make meaning about their practice. The three interpretative repertoires were "taking responsibility for correcting patients' behavior," "justifying patient care as contradictory practice," and "patients as unpredictable." However, although forensic psychiatric care emphasizes both security and care, nursing staff's use of these interpretative repertoires provided multiple interpretations that lead to contradictory ways of understanding patient care. These findings show that talk itself can be understood as problematic in various situations. A possible implication for clinical forensic nursing practice might be that the nurse-patient relationship does not support patients' best interests. For example, when language endows the patient with certain characteristics, this talk is justified and given meaning by its context and thus has an influence on a patient's individual need for care.

  • 19.
    Snellman, Ingrid
    et al.
    Mälardalen University, School of Health, Care and Social Welfare.
    Gustafsson, Christine
    Mälardalen University, School of Health, Care and Social Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare.
    Patients' and Caregivers' Attributes in a Meaningful Care Encounter: Similarities and Notable Differences2012In: ISRN Nursing, ISSN 2090-5483, Vol. 2012, no Article ID 320145Article in journal (Refereed)
    Abstract [en]

    In today's healthcare system, there is an imbalance between what patients expect of caregivers' care and their perception of the care they get. How is it possible to reduce this imbalance? The aim of this paper was to describe attributes associated with meaningful encounters in the Swedish healthcare system based on patients' and caregivers' written narratives and to note the differences and similarities between the attributes identified by the two groups. This paper is a qualitative descriptive study. The analysis was guided by qualitative content analyses. Based on patients' narratives, attributes associated with a meaningful encounter fell into four categories: the kind-hearted caregiver, the thoughtful caregiver, the mutually oriented caregiver, and the helpful caregiver. Based on caregivers' narratives, the attributes were categorized as being humane, caring through physical contact, caring by nurturing communication, joy and laughter in care, and a sense of mutuality. The results show that there are both similarities and differences in patients' and caregivers' opinions about the attributes of a meaningful encounter. Knowing more about the attributes associated with meaningful encounters makes it possible for caregivers to individualize care for patients and makes it easier to help and support patients in what they most need support with.

  • 20.
    Snellman, Ingrid
    et al.
    Mälardalen University, School of Health, Care and Social Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare.
    Gustafsson, Christine
    Mälardalen University, School of Health, Care and Social Welfare.
    Patients’ and Caregivers’ Attributes in a Meaningful Care Encounter: Similarities and Notable Differences2012In: Aging in a Changing World, 2012Conference paper (Other academic)
    Abstract [en]

    In today’s healthcare system, there is an imbalance between what patients expect of caregivers’ care and their perception of the care they get. How is it possible to reduce this imbalance? The aim of this paper was to describe attributes associated with meaningful encounters in the Swedish healthcare system based on patients’ and caregivers’ written narratives and to note the differences and similarities between the attributes identified by the two groups. This paper is a qualitative descriptive study. The analysis was guided by qualitative content analyses. Based on patients’ narratives, attributes associated with a meaningful encounter fell into four categories: the kind-hearted caregiver, the thoughtful caregiver, the mutually oriented caregiver, and the helpful caregiver. Based on caregivers’ narratives, the attributes were categorized as being humane, caring through physical contact, caring by nurturing communication, joy and laughter in care, and a sense of mutuality. The results show that there are both similarities and differences in patients’ and caregivers’ opinions about the attributes of ameaningful encounter. Knowing more about the attributes associated with meaningful encounters makes it possible for caregivers to individualize care for patients and makes it easier to help and support patients in what they most need support with.

  • 21.
    Snögren, Asa
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Physiotherapy: How to work with evidence in daily practice2019In: Journal of Evaluation In Clinical Practice, ISSN 1356-1294, E-ISSN 1365-2753, Vol. 25, no 2, p. 216-223Article in journal (Refereed)
    Abstract [en]

    Rationale, aims, and objectives The concept of evidence-based health care has gained increasing currency over the past decades; however, questions persist regarding how to overcome the gap between research and health care practice. The question arises whether this gap derives from a true knowledge deficit or from physiotherapists' perception of working with evidence. The aim of the current study was to illuminate changes to the meaning of working with evidence experienced by a cohort of physiotherapists following an education program. Methods A phenomenological hermeneutic design with open-ended group interviews was carried out with physiotherapists who had participated in an education program about evidence and how to implement evidence-based practice (EBP) in day-to-day practice. Findings The interviews provided descriptions of working with evidence according to three major themes: "Confidence with the concept of evidence in relation to a way of working"; "Experience of EBP as a duty to seek evidence for individual patients"; and "EBP experienced as an integrated and patient-oriented activity". Conclusions The physiotherapists' lived experiences demonstrated that the participants' perception of the concept of evidence mainly concerned a broadening of the definition of evidence, and this altered perception of evidence could interpreted as the physiotherapists viewing EBP as a more integrated and patient-oriented activity than before.

  • 22.
    Snöljung, Åsa
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Mattsson, Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    The diverging perception among physiotherapists of how to work with the concept of evidence: A phenomenographic analysis2014In: Journal of Evaluation In Clinical Practice, ISSN 1356-1294, E-ISSN 1365-2753, Vol. 20, no 6, p. 759-766Article in journal (Refereed)
    Abstract [en]

    Rationale, aims and objectives

    Changes in Sweden's municipal care have impacted the situation of physiotherapists by the adoption of practice based on research evidence. Even if physiotherapists appear to be in favour of the idea of evidence-based practice, barriers still exist that prevent many from keeping up with current research. The aim of this study was to identify and describe the different ways in which physiotherapists in municipal care perceive the concept of evidence in rehabilitation.

    Methods

    A phenomenographic design with semi-structured interviews was carried out with physiotherapists working with frail older people in three municipal care units in two neighbouring municipalities in Sweden. The physiotherapists' perceptions of evidence were explored in 12 interviews.

    Results

    Distinct perceptions of the concept of evidence are identified in three categories: ‘Confidence with the concept of evidence in relation to measurement instruments’; ‘Perception of evidence-based practice as a duty, condition and demand of the profession’; and ‘Evidence-based work as a separate rather than directly patient-oriented activity’.

    Conclusions

    Physiotherapists take full responsibility to comply with what they perceive to be the demands of their profession. However, what evidence actually meant, and therefore what the practical element of this responsibility consisted of, was not as clear.

  • 23.
    Östlund, Gunnel
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Zander, Viktoria
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Elfström, Magnus
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Anbäcken, Els-Marie
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    “It gets easier when the sun is shining”: a follow-up study after a reablement intervention2017Conference paper (Refereed)
  • 24.
    Östlund, Gunnel
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Zander, Viktoria
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Elfström, Magnus
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Anbäcken, Els-Marie
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Older adults’ experiences of a reablement process.: "To be treated like an adult, and ask for what I want and how I want it"In: Educational gerontology, ISSN 0360-1277, E-ISSN 1521-0472Article in journal (Refereed)
    Abstract [en]

    This is a follow-up study of intensive home-based rehabilitation from older people’s perspectives. The aim was to explore older adults’ descriptions of interactional needs related to autonomy in life. The purpose was also to explore the importance of significant others in the reablement process.

    Method: The sample consisted of 23 women aged 72–92 who were included consecutively in the first project year. Data were collected through face-to-face semi-structured interviews that were recorded, transcribed, and analyzed using qualitative latent content analysis.

    Results: Regaining autonomy through reablement was achieved by the interviewees although not always to the same extent as before. Three themes related to interactional needs were identified: (1) Transitional relations, referring to encounters with staff in time-limited relations. (2) More stable relations with significant others without limitation of time. (3) The acceptance of growing older and of death as a “natural departure”. Transitional relations with professionals, and more stable relations with significant others, are important parts of the reablement process according to older adults.

    In conclusion: Professionals within gerontology need to recognize the social and historical context including the symbolic meanings each older person gives to life’s necessaries. Older adults appreciate reablement which includes rehabilitation goals related to the person’s stable relationships and larger life context.

  • 25.
    Östlund, Gunnel
    et al.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Zander, Viktoria
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Elfström, Magnus, L.
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Gustafsson, Lena-Karin
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    Anbäcken, Els-Marie
    Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.
    ´Nothing to do about it, simply hang on´ - Older women´s experiences of social and existential health after a reablement intervention2018Conference paper (Other academic)
1 - 25 of 25
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