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  • 1.
    Adair, Brooke
    et al.
    Australian Catholic Univ, Ctr Disabil & Dev Res, Fitzroy, Vic, Australia..
    Ullenhag, Anna
    Mälardalen University, School of Health, Care and Social Welfare.
    Rosenbaum, Peter
    McMaster Univ, Hamilton, ON, Canada..
    Granlund, Mats
    Jonkoping Univ, CHILD, SIDR, Sch Hlth Sci, Jonkoping, Sweden..
    Keen, Deb
    Griffith Univ, Autism Ctr Excellence, Mt Gravatt, Qld, Australia..
    Imms, Christine
    Australian Catholic Univ, Ctr Disabil & Dev Res, Fitzroy, Vic, Australia..
    Measures used to quantify participation in childhood disability and their alignment with the family of participation-related constructs: a systematic review2018In: Developmental Medicine & Child Neurology, ISSN 0012-1622, E-ISSN 1469-8749, Vol. 60, no 11, p. 1101-1116Article, review/survey (Refereed)
    Abstract [en]

    AimWe aimed to identify measures used to assess the participation of disabled children and to map the measures' content to the family of participation-related constructs (fPRC) to inform future research and practice. MethodSix databases were searched to identify measures used to assess participation in health, psychology, and education research. Included studies involved children aged 0 to 18 years with a permanent impairment or developmental disability and reported use of a quantitative measure of participation. A second search sought relevant literature about each identified measure (including published manuals) to allow a comprehensive understanding of the measure. Measurement constructs of frequently reported measures were then mapped to the fPRC. ResultsFrom an initial yield of 32 767 articles, 578 reported one or more of 118 participation measures. Of these, 51 measures were reported in more than one article (our criterion) and were therefore eligible for mapping to the fPRC. Twenty-one measures quantified aspects of participation attendance, 10 quantified aspects of involvement as discrete scales, and four quantified attendance and involvement in a manner that could not be separated. InterpretationImproved understanding of participation and its related constructs is developing rapidly; thoughtful selection of measures in research is critical to further our knowledge base.

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