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Dilemmas of participation in everyday life in early rheumatoid arthritis: A qualitative interview study (The Swedish TIRA Project)
Linköping University, Linköping, Sweden.
Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.ORCID iD: 0000-0002-3068-5384
Linköping University, Linköping, Sweden.
Linköping University, Linköping, Sweden.
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2015 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 37, no 14, 1251-1259 p.Article in journal (Refereed) Published
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Abstract [en]

Purpose: To explore the experiences of today's patients with early rheumatoid arthritis (RA) with respect to dilemmas of everyday life, especially regarding patterns of participation restrictions in valued life activities. Methods: A total of 48 patients, aged 20-63, three years post-RA diagnosis were interviewed using the Critical Incident Technique. Transcribed interviews were condensed into meaningful units describing actions/situations. These descriptions were linked to ICF participation codes according to the International Classification of Functioning, Disability and Health (ICF) linking rules. Results: Dilemmas in everyday life were experienced in domestic life, interpersonal interactions and relationships, community, social and civic life. Most dilemmas were experienced in domestic life, including participation restrictions in, e.g. gardening, repairing houses, shovelling snow, watering pot plants, sewing or walking the dog. Also many dilemmas were experienced related to recreation and leisure within the domain community, social and civic life. The different dilemmas were often related to each other. For instance, dilemmas related to community life were combined with dilemmas within mobility, such as lifting and carrying objects. Conclusions: Participation restrictions in today's RA patients are complex. Our results underline that the health care needs to be aware of the patients' own preferences and goals to support the early multi-professional interventions in clinical practice.

Place, publisher, year, edition, pages
2015. Vol. 37, no 14, 1251-1259 p.
Keyword [en]
Activity limitations, Critical incident technique, Patient perspective, Rehabilitation, adult, Arthritis, Rheumatoid, clinical trial, daily life activity, demography, disabled person, female, human, human relation, International Classification of Functioning, Disability and Health, leisure, male, middle aged, multicenter study, patient preference, prospective study, qualitative research, questionnaire, Sweden, young adult, Activities of Daily Living, Disabled Persons, Humans, Interpersonal Relations, Leisure Activities, Prospective Studies, Residence Characteristics, Surveys and Questionnaires
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Health Sciences
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URN: urn:nbn:se:mdh:diva-31605DOI: 10.3109/09638288.2014.961658ISI: 000357763700006Scopus ID: 2-s2.0-84931028066OAI: oai:DiVA.org:mdh-31605DiVA: diva2:929686
Available from: 2016-05-19 Created: 2016-05-19 Last updated: 2017-11-30Bibliographically approved

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