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Living in negotiation: patients’ experiences of being in the diagnostic process of COPD
Narvik University College.
Universitetet i Tromsö.
Mälardalen University, School of Health, Care and Social Welfare. Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.ORCID iD: 0000-0002-9714-577X
2014 (English)In: International Journal of COPD, ISSN 1178-2005, Vol. 9, 441-451 p.Article in journal (Refereed) Published
Abstract [en]

Purpose: To illuminate patients’ lived experiences of going through the process of being diagnosed with chronic obstructive pulmonary disease (COPD). Patients and methods: A phenomenological-hermeneutic analysis was applied in the inter- pretation of interviews with eight persons diagnosed with mild or moderate COPD.

Results: One main theme ‘living in negotiation’, and three themes ‘living with a body out of step with the diagnosis’, ‘dealing with the past’, and ‘being challenged by the future’ reflected the process participants were living through in their quest for acceptance and a new balance in life. Participants found that the diagnostic processes were confusing, and that the diagnosis itself was ‘a slap in the face’. Unclear messages gave rise to fluctuating between an under- standing of the condition as ‘not too severe’, insecurity, and fear. Shame and guilt related to the diagnosis had origins in the past, and in combination with the idea of ‘chronic’ the COPD diagnosis interfered with the present moment and gave rise to uncertainty for the future. The understanding of the present is related to negotiations not only with the past, but also with the future. Thus temporal aspects of the diagnosis are of great significance for the process of finding acceptance.

Conclusion: Regardless of disease severity, the diagnosis seems to be a breakdown of life, which puts life itself at stake. Medical professionals should be aware that the way the diagnosis is disclosed and communicated has considerable significance for how individuals understand and deal with their illness. The diagnosis should be communicated face-to-face, clearly and with empathy, and followed by information about COPD. Physicians should allow time and listen to the patients’ stories, and thus develop a shared understanding of the temporal aspect of the illness and patients’ needs and concerns. Thus, good communication is essential in determin- ing whether the patient remains in negotiation, or enters a process toward acceptance and new understanding.

Place, publisher, year, edition, pages
2014. Vol. 9, 441-451 p.
Keyword [en]
Chronic obstructive pulmonary disease, phenomenological hermeneutics, lived experience, temporality
National Category
Medical and Health Sciences
Research subject
Care Sciences within Health and Welfare
Identifiers
URN: urn:nbn:se:mdh:diva-24964DOI: 10.2147/COPD.S60182ISI: 000335445600001Scopus ID: 2-s2.0-84900448464OAI: oai:DiVA.org:mdh-24964DiVA: diva2:715887
Available from: 2014-05-07 Created: 2014-05-07 Last updated: 2014-06-17Bibliographically approved

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CiteExportLink to record
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Cite
Citation style
  • apa
  • ieee
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  • de-DE
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