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Next of Kin's experiences of shame in end-of-life care
Linnæus University.
Mälardalen University, School of Health, Care and Social Welfare. Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare. Linnæus University; Haraldsplass University College, Bergen, Norway .ORCID iD: 0000-0003-0017-5188
Linnæus University.
Department of Nursing, Gjøvik University College, Norway; Ersta Sköndal University College.
2014 (English)In: Journal of Hospice and Palliative Nursing, ISSN 1522-2179, E-ISSN 1539-0705, Vol. 16, no 2, 86-92 p.Article in journal (Refereed) Published
Abstract [en]

The aim of this study was to gain a greater understanding of the experiences of shame of next of kin in end-of-life care. Seventeen next of kin who had lost a family member were interviewed. A method inspired by Gadamer's hermeneutic approach was used to interpret possible experiences of shame and to discuss these interpretations. The result showed that next of kin's experiences of shame are linked to their perception of the remaining time and are guided by views on morality and what is right and wrong. Shame can occur when the next of kin are involved and actually cause harm to the family member as well as in situations that are beyond their control. Shame can also involve actions that have nothing to do with what they have actually done but is instead a shame that is placed on them by others, for example, health professionals or relatives. Shame is interpreted as experiences of ignominy, humiliation, and disgrace. Second-order shame is also found. It is important that health professionals are aware of these experiences of unhealthy shame when they meet and support next of kin in end-of-life care.

Place, publisher, year, edition, pages
2014. Vol. 16, no 2, 86-92 p.
Keyword [en]
end-of-life care, hermeneutics, next of kin, shame
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:mdh:diva-24815DOI: 10.1097/NJH.0000000000000025ISI: 000333043800005Scopus ID: 2-s2.0-84896353900OAI: oai:DiVA.org:mdh-24815DiVA: diva2:710340
Available from: 2014-04-07 Created: 2014-04-04 Last updated: 2014-04-25Bibliographically approved

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CiteExportLink to record
Permanent link

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Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
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