mdh.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Jag är normal fast annorlunda: Att leva med cystisk fibros
Mälardalen University, School of Health, Care and Social Welfare.
Mälardalen University, School of Health, Care and Social Welfare.
2014 (Swedish)Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
Abstract [sv]

Bakgrund. Föräldrar upplever oro över att cystisk fibros ska få deras barn att uppleva sig annorlunda. På grund av en långvarig relation upplever sjuksköterskor det känslomässigt krävande att vårda en patient med cystisk fibros i livets slutskede.

Problem. Få kunskap om den som är drabbad av CF upplever att sjukdomen är ett hinder för att leva.

Syfte. Beskriva upplevelser av att leva med cystisk fibros.

Metod. En kvalitativ ansats har använts i form av en litteraturstudie med beskrivande syntes av publicerade artiklar.

Resultat. Det framkommer att människor med cystisk fibros har varierande upplevelser av begränsningar och autonomi. De upplever sig som normala utifrån sin livsstil samtidigt som de känner sig annorlunda. Ungdomar upplever svårigheter i vardagen och genomgår en process för att acceptera sjukdomen som en del av livet. Att uppleva ansvar över sin vård och sitt liv skapar upplevelse av självständighet vilket underlättar för den drabbade att uppleva sig som normal.

Slutsatser. Det är svårt att acceptera ett liv med CF, den drabbade upplever sig som annorlunda samtidigt som de kämpar för att uppleva sig som normala. Ytterligare forskning behövs om vårdrelationen mellan sjuksköterska och patienten som är drabbad av CF.

Abstract [en]

Background. Parents experience concern because cystic fibrosis will make their children experience themselves different. Because of a lengthy nurse-patient relationship the nurses‟ experience it is emotionally demanding to care for a patient with cystic fibrosis in the final phase of life.

Problem. To get knowledge if the one affected by cystic fibrosis experience that the disease is an obstacle in life.

Purpose. To describe experiences of living with cystic fibrosis.

Method. A qualitative approach was used in the form of a literature study with a descriptive synthesis of published articles.

Results. It appears that people with cystic fibrosis experience varied perceptions of limitations and autonomy. They experience themselves as normal as seen from their lifestyle at the same time as they felt different. Young people experience difficulties in their everyday life and go through a process of accepting the disease as a part of life. To experience responsibility over your care and life creates an experience of independence which makes it easier for the ones‟ affected to experience themselves as normal.

Conclusions. It is difficult to accept a life with cystic fibrosis, the affected ones experience themselves as different at the same time as they struggle to experience themselves as normal. Further research is needed about the nurse-patient relationship between the nurse and the patient that is affected by cystic fibrosis.

Place, publisher, year, edition, pages
2014. , 27 p.
Keyword [en]
chronic illness, cystic fibrosis, experience, final phase of life, nursing and participation
Keyword [sv]
cystisk fibros, delaktighet, kronisk sjukdom, livets slutskede, omvårdnad och upplevelse
National Category
Nursing
Identifiers
URN: urn:nbn:se:mdh:diva-24621OAI: oai:DiVA.org:mdh-24621DiVA: diva2:704298
Subject / course
Caring Science; Caring Science
Supervisors
Examiners
Available from: 2014-07-01 Created: 2014-03-11 Last updated: 2014-07-01Bibliographically approved

Open Access in DiVA

Jag är normal fast annorlunda(589 kB)213 downloads
File information
File name FULLTEXT01.pdfFile size 589 kBChecksum SHA-512
bb962f10fc0abb98f08e4feb38f7d7cf6ee6bcad97840fabeb970f4633783b1033a0155f61498bcc38bef63489ec3ff9135e19d07833fedcd3c7d52f5ecb99c0
Type fulltextMimetype application/pdf

By organisation
School of Health, Care and Social Welfare
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 213 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

Total: 640 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf