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Older people’s dependence on caregivers’ help in their own homes and their lived experiences of their opportunity to make independent decisions
Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare. Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.ORCID iD: 0000-0002-1346-5670
Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.ORCID iD: 0000-0002-1085-0872
Department of Health Care Sciences of Ersta Sköndal University College and Researcher.
2013 (English)In: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 8, no 2, p. 139-148Article in journal (Refereed) Published
Abstract [en]

The aim of this study was to illuminate the meaning of older people’s dependence on caregivers’ help, and of their opportunity to make independent decisions.

Background. Throughout the world, the older population is growing, and in Sweden, the system of care for older people is currently undergoing change. Older people in the need of care are expected to live at home for as long as possible.

Design.A qualitative and life world approach was used.

Methods. Audio-taped interviews were conducted with twelve older persons living at home, dependent on daily municipal home help service. A phenomenological hermeneutic method was utilised to disclose the meanings of lived experiences.

Finding. The findings revealed three themes : being facilitated to make one’s own decisions, being hindered from making one’s own decisions, struggling for vs. resigning oneself to losing the opportunity to make one’s own decisions.

The comprehensive understanding revealed that as older people become more dependent on caregivers’ help, their opportunity to self-determine is challenged and this is stressful for them.

Conclusion. The older persons assess their opportunity to self-determine differently, depending on who they are as a person. The caregivers need an awareness of this, and further research is needed to gain knowledge and understanding of how caregivers can improve the way they support and enhance older people’s opportunity to decide for themselves.

Implications for practice. The findings revealed older persons need to exercise more self-determination and caregivers’ need for knowledge to enable this. Further, it indicates a move towards a person-centred approach to focus on persons as individuals and see them as interdependent. The findings contribute to improvements in similar contexts worldwide.

Place, publisher, year, edition, pages
2013. Vol. 8, no 2, p. 139-148
Keywords [en]
decision-making, home care, narrative, nursing, phenomenological
National Category
Medical and Health Sciences
Research subject
Care Sciences
Identifiers
URN: urn:nbn:se:mdh:diva-16329DOI: 10.1111/j.1748-3743.2012.00338.xPubMedID: 22823527Scopus ID: 2-s2.0-84876085331OAI: oai:DiVA.org:mdh-16329DiVA, id: diva2:573026
Available from: 2012-11-29 Created: 2012-11-29 Last updated: 2018-10-16Bibliographically approved

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Breitholtz, AgnetaSnellman, Ingrid

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