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Experiences of Active Everyday Life Among Persons with Prodromal Alzheimer’s Disease: A Qualitative Study
Department of Neurobiology, Care Sciences and Society, Division of Occupational Therapy, Karolinska Institutet, Stockholm, Sweden.
School of Occupational Therapy, Pacific Northwest University of Health Sciences, Yakima, WA, United States.
Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare. Department of Neurobiology, Care Sciences and Society, Division of Clinical Geriatrics, Karolinska Institutet, Stockholm, Sweden.ORCID iD: 0000-0003-0964-1747
Department of Neurobiology, Care Sciences and Society, Division of Clinical Geriatrics, Karolinska Institutet, Stockholm, Sweden.
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2022 (English)In: Journal of Multidisciplinary Healthcare, E-ISSN 1178-2390, Vol. 15, p. 1921-1932Article in journal (Refereed) Published
Abstract [en]

Introduction: Identifying strategies to prevent or delay cognitive decline among the rising numbers of elderly is acknowledged as a global public health priority. Research suggests that an active lifestyle in terms of participation in activities has the potential to reduce the risk of later-life cognitive decline. The concept of “active everyday life”, however, needs to be further explored. Aim: The study aimed to explore and describe the active everyday lives of persons with prodromal Alzheimer’s disease (AD) in terms of quality of participation in activities and perceived restrictions. Methods: This qualitative study was part of a larger project, the MIND-ADMINI trial. Nine in-depth interviews were conducted with seven participants (2 males, 5 females; mean age of 72.3) at baseline before the intervention. The data were collected from January to October 2018 and analyzed using the grounded theory approach. Results: Four categories emerged from the analysis: (i) active body and mind; (ii) doing desired meaningful activities to feel engaged, contented, and satisfied; (iii) doing in the context of being connected to others; (iv) ability in making decisions and taking actions. From these categories, which presented the key elements of an active everyday life, a core category was identified: Living a complete life in flow. Conclusion: The findings suggest key elements of participation quality that contribute to an active life. The identified elements are important to be considered in rehabilitation to provide opportunities and possibilities for participation to enable and improve the quality of participation among persons with cognitive impairments. 

Place, publisher, year, edition, pages
Dove Medical Press Ltd , 2022. Vol. 15, p. 1921-1932
Keywords [en]
activity, Alzheimer’s disease, everyday life, participation, prevention, qualitative method
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Health Sciences
Identifiers
URN: urn:nbn:se:mdh:diva-59940DOI: 10.2147/JMDH.S369878ISI: 000853889900001Scopus ID: 2-s2.0-85137083382OAI: oai:DiVA.org:mdh-59940DiVA, id: diva2:1695586
Available from: 2022-09-14 Created: 2022-09-14 Last updated: 2024-07-04Bibliographically approved

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Thunborg, Charlotta

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