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An electronic patient-reported outcome created based on my needs is worth using: an explorative qualitative study investigating young people's opinions for a health assessment tool
Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare. Clin Pain Rehabil Vastmanland, Vasteras, Region Vastmanl, Sweden; Reg Vastmanland Uppsala Univ, Hosp Vastmanland Vasteras, Ctr Clin Res Reg, S-72189 Vasteras, Sweden . (BeMe)
Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare. (CHIP)ORCID iD: 0000-0002-5566-3421
Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.ORCID iD: 0000-0002-4537-030X
Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare. Reg Vastmanland Uppsala Univ, Hosp Vastmanland Vasteras, Ctr Clin Res Reg, S-72189 Vasteras, Sweden; Orthoped Clin, Vasteras, Region Vastmanl, Sweden.ORCID iD: 0000-0003-3419-9292
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2022 (English)In: Journal of Patient-Reported Outcomes, E-ISSN 2509-8020, Vol. 6, no 1, article id 29Article in journal (Refereed) Published
Abstract [en]

Background: Young people in different healthcare settings are positive about using electronic patient-reported outcomes (ePROs), which are meant to increase the effectiveness and safety of interventions from the patient's perspective. Sweden offers free healthcare to young people aged 12-25 years at 275 youth health clinics (YHCs), whose goals are to strengthen young people and promote sexual, physical, and mental health. YHCs need effective ways to identify the overall picture of young people's health and health-related problems. To our knowledge, there is no ePRO for YHCs that provides an overview of young people's health from several health perspectives. The aim of this study was to explore young people's view on content and design of an ePRO to provide an overview of their health and health related problems when visiting a YHC, and their opinion on what healthcare needs to consider when using the ePRO. This was an explorative qualitative study. The participants were included from five YHCs, in different socioeconomic areas in central Sweden. Fifteen participants were included: 10 girls, three boys, and two non-binary participants with an age range of 16-22 years. Data were collected using a semi-structured interview guide and individual interviews, and inductive content analysis was performed.

Results: One main theme, "ePRO created based on my needs is worth using" and two sub-themes, "Appealing content and design" and "Trusting healthcare", emerged. The participants wanted that an ePRO should include overall questions about mental-, physical-, and sexual health and social support. Participants also believed the ePRO must disclose the risks of self-harm or suicide. The participants noted the importance of emotional and digital security when using the ePRO and having a confidential conversation with a healthcare provider. To share health information means to trust to gain health.

Conclusions: The study participants' views on content and design can form the basis for designing an ePRO for young people. Their thoughts on safety and treatment in healthcare can be considered in the development process. This study is the starting point for developing an ePRO for young people at YHCs.

Place, publisher, year, edition, pages
2022. Vol. 6, no 1, article id 29
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:mdh:diva-57733DOI: 10.1186/s41687-022-00436-zISI: 000773956800001PubMedID: 35347495Scopus ID: 2-s2.0-85127274094OAI: oai:DiVA.org:mdh-57733DiVA, id: diva2:1650161
Available from: 2022-04-06 Created: 2022-04-06 Last updated: 2024-06-11Bibliographically approved
In thesis
1. Development of a digital Health Report System: From exploration of need to identification of health-related problems in young people
Open this publication in new window or tab >>Development of a digital Health Report System: From exploration of need to identification of health-related problems in young people
2023 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Introduction While foremost mental health and psychosomatic symptoms are increasing in young people, little is known about the health in young people visiting Youth Health Clinics (YHC). Also, there is no unified health survey used to collect overall health data from young people nationally at YHCs.

Aims To develop a health- and welfare technology tool to identify and increase knowledge about health-related problems in young people visiting YHCs.

Methods The structured development of a health and welfare technology tool, the Health Report System (studies I to III) had a consultative level participatory approach. Study I was qualitative and contained interviews with young people on content and design for a digital questionnaire. Studies II and III had mixed methods design and included young people, healthcare professionals, and a researcher expert panel. Qualitative data came from interviews and quantitative data from questionnaires. The studies evaluated usability and feasibility. Study IV was quantitative and used data from the evaluation questionnaire, exploring the mediated association of variables on mental well-being, using a set of regression analyses.

Results Study I: Young people (n=15) were positive to use a health and welfare technology tool if it was in accordance with their needs. It should give an overview of mental-, physical-, and sexual health and social support. The results should be discussed with healthcare professionals during a health assessment. Study II: The researchers used guidelines to develop the Health Report System and included ten validated and reliable health questionnaires. The usability of the Health Report System was evaluated by young people (n=4), YHC healthcare professionals (n=3), and an expert panel (n=7). The converged qualitative and quantitative data showed that the Health Report System was very usable for YHCs. Study III: The qualitative results from healthcare professionals’ interviews (n=11) and quantitative questionnaire results from young people (n=54) were merged. Using a matrix for assessment of feasibility, the researcher's consensus decision, was that progression and use of the Health Report System in an intervention study was feasible. Study IV: Results from young people’s (n=223) health data showed statistical significance for the mediating effect of social functioning between the sense of mastery and mental well-being. 

Conclusion This thesis presents that the Health Report System has the potential to identify health-related problems in young people, strengthen the health communication between young people and healthcare professionals, and influence the YHC organization. 

Place, publisher, year, edition, pages
Västerås: Mälardalens universitet, 2023. p. 92
Series
Mälardalen University Press Dissertations, ISSN 1651-4238 ; 386
National Category
Physiotherapy
Research subject
Physiotherapy
Identifiers
urn:nbn:se:mdh:diva-64138 (URN)978-91-7485-606-4 (ISBN)
Public defence
2023-10-27, Lambda och digitalt via Zoom, Mälardalens universitet, Västerås, 09:15 (English)
Opponent
Supervisors
Funder
Region Västmanland, LTV-939219
Available from: 2023-08-31 Created: 2023-08-31 Last updated: 2025-02-11Bibliographically approved

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Mattebo, MagdalenaSöderlund, AnneRevenäs, Åsa

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