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Dementia care and “best practice” - in everyday life until end of life
Mälardalen University, School of Health, Care and Social Welfare. (CAREH & WELFARE)ORCID iD: 0000-0002-5711-2391
2018 (English)In: International Conference Innovation, Prevention and Care for NCDs and Global Health, 2018Conference paper, Oral presentation with published abstract (Other academic)
Abstract [eo]

Title: Dementia care and “best practice” - in everyday life until end of life

 

Background: This study is part of a project financed by Mälardalen Skill Centre for Health and Welfare (MKHV) 2016-2018, aiming at providing practitioners bases to develop evidence based activities in municipal eldercare.

 

Aim: To search for “best practice” within municipal care for older persons with dementia (PWD), through a knowledge overview.

Methods: Based on a literature review with search words taking a broad view, 36 articles were analyzed and categorized into three areas: 1. End of life care (EOL) 2. Education for staff and 3. Knowledge of caring and interacting from the perspectives of PWD, next of kin, care professionals and management. The results were presented at three seminars for practitioners who were invited to give feedback.

 

Results: EOL: Findings show diversity between different care professionals, the PWD and next of kin. Care professionals and next of kin seldom regard dementia as the terminal illness it is. This makes the border between everyday life and end of life care blurred which complicates care and interactions. Education: Intervention studies with education program based on a learning philosophy and focusing on communication are promising. Interprofessional education may help staff to think outside the box. When structural reforms are included in interventions there is a potential for lasting change. Knowledge of caring and interacting showed diverse views on therapies, where intentions of therapies may clash with PWD´s perspectives, such as symptom control rather than adding quality of life. Care management assessments risk being discriminatory if PWD are treated as objects. Nuanced examples of life review and validation method challenge routines and show potentials to enrich life and care of PWD.

 

Conclusions: A broad view on “best practice” informs dementia care with a holistic perspective encompassing art, communication skills, life history, interprofessional cooperation as well as environmental aspects of everyday life until end of life. More participant observation type of studies are welcome to capture the interplay between the actors: older PWD, their next of kin and care professionals. PWD´s voices are crucial to develop best practices.

Place, publisher, year, edition, pages
2018.
National Category
Social Work
Identifiers
URN: urn:nbn:se:mdh:diva-45301OAI: oai:DiVA.org:mdh-45301DiVA, id: diva2:1368099
Conference
International Conference Innovation, Prevention and Care for NCDs and Global Health
Available from: 2019-11-06 Created: 2019-11-06 Last updated: 2019-11-13

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CiteExportLink to record
Permanent link

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Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf