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Participation in daily life for adults with profound intellectual (and multiple) disabilities: How high do they climb on Shier's ladder of participation?
Mälardalen University, School of Health, Care and Social Welfare.ORCID iD: 0000-0003-0305-7929
Mälardalen University, School of Education, Culture and Communication, Educational Sciences and Mathematics. Stockholm Univ, Stockholm, Sweden..ORCID iD: 0000-0002-9273-2203
Mälardalen University, School of Business, Society and Engineering. Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare. Dalarna Univ, Falun, Sweden..ORCID iD: 0000-0001-7832-2155
Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.ORCID iD: 0000-0002-9821-9945
2019 (English)In: Journal of Intellectual Disabilities, ISSN 1744-6295, E-ISSN 1744-6309, article id UNSP 1744629519863959Article in journal (Refereed) Published
Abstract [en]

Participation is the goal of Swedish disability policy, but it is difficult to achieve for adults with profound intellectual (and multiple) disabilities (PI(M)D). Since these adults are dependent on others in every aspect of their lives, others control their ability to participate in everyday life decisions. This study used observations, analyzed with Shier's ladder of participation, to elucidate and describe participation in daily life for adults with PI(M)D living in a group home. The results showed that the adults often reached the first three levels of Shier's ladder, one adult reached the fourth level once, and no one reached the fifth level. Participation on a higher level, therefore, seems hard to reach for adults. Staff members' attitudes toward the adults' capability can also be a barrier to participation. Applying Shier's ladder of participation can provide valuable information that might lead to increased participation in daily life for adults with PI(M)D.

Place, publisher, year, edition, pages
SAGE PUBLICATIONS LTD , 2019. article id UNSP 1744629519863959
Keywords [en]
group home, participation, profound intellectual (and multiple) disabilities, Shier's ladder of participation
National Category
Occupational Therapy Gerontology, specialising in Medical and Health Sciences
Identifiers
URN: urn:nbn:se:mdh:diva-45010DOI: 10.1177/1744629519863959ISI: 000478327200001PubMedID: 31319749OAI: oai:DiVA.org:mdh-45010DiVA, id: diva2:1343020
Available from: 2019-08-15 Created: 2019-08-15 Last updated: 2019-08-15Bibliographically approved

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Talman, LenaWilder, JennyStier, JonasGustafsson, Christine

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Journal of Intellectual Disabilities
Occupational TherapyGerontology, specialising in Medical and Health Sciences

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