mdh.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Att leva med sjukdomen ALS: En kvalitativ litteraturstudie ur ett patientperspektiv
Mälardalen University, School of Health, Care and Social Welfare.
Mälardalen University, School of Health, Care and Social Welfare.
2019 (Swedish)Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
Abstract [en]

Background: This section includes family and nurses experiences of caring for a person with ALS. Families experience mental and physical stress in caring for a close relative. They describe how their everyday life of caring for a close relative with the disease ALS is and how challenging it can be. Nurses experience a lack of knowledge surrounding the disease and as a result, difficulties in dealing with patients and their families may arise. Both nurses and patients’ families emphasize the importance of knowledge about the disease. Nurses also emphasize the importance they have as health care professionals and their obligation among other things to inform patients families of relief care.

Aim: The purpose is to describe patients’ experiences of living with ALS.

Method: The method of this thesis is a qualitative literature study and analyzed from a descriptive synthesis based on the synthetic process.

Results: The findings present three themes describing patients’ experiences of being stricken with ALS. The three themes presented in the findings are "Experiences of being afflicted with ALS", “Experiences of emotional upheaval by ALS” and "Experiences of bodily changes with ALS”.

Conclusion: In the findings of this study patients’ experiences of living with ALS are described. It is of importance that involved healthcare professionals continuously strive for increased knowledge and information about patients’ experiences. High-quality care is one of the many obligations a registered nurse must upkeep. Increased knowledge creates a potential possibility for evolving and better care and thus a better understanding towards patients with ALS. Involving close family and relatives is important when caring for people with ALS, as it facilitates for the well-being and sense of safety of these patients. It is thus important that healthcare professionals also pay attention to the relatives of these patients to support them during the whole process.

Place, publisher, year, edition, pages
2019. , p. s. 49
Keywords [sv]
ALS, daglig kamp, förlust, patienter och upplevelser.
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:mdh:diva-42801OAI: oai:DiVA.org:mdh-42801DiVA, id: diva2:1292098
Subject / course
Caring Science
Supervisors
Examiners
Available from: 2019-02-28 Created: 2019-02-27 Last updated: 2019-02-28Bibliographically approved

Open Access in DiVA

fulltext(586 kB)176 downloads
File information
File name FULLTEXT08.pdfFile size 586 kBChecksum SHA-512
13f0da66c3b97ed3e124b3e9ac75c826d92fe64c8af758e48a9e9997d3c9d478b1b6ea1642a131ae9a21c188f45a59bfc5dd11069853ad732dfdeb0a6415c9fa
Type fulltextMimetype application/pdf

By organisation
School of Health, Care and Social Welfare
Medical and Health Sciences

Search outside of DiVA

GoogleGoogle Scholar
Total: 176 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

urn-nbn

Altmetric score

urn-nbn
Total: 176 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf