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That mr. Alzheimer… you never know what he’s up to, but what about me? A discourse analysis of how Swedish spouse caregivers can make their subject positions understandable and meaningful
Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.ORCID iD: 0000-0001-8557-8714
Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare. (COMCARE)ORCID iD: 0000-0002-0407-9831
Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare. Högskolan Dalarna. (PriLiv)ORCID iD: 0000-0003-2511-9502
2018 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 13, no 1, p. 1748-2631, article id ZQHW 1554025Article in journal (Refereed) Published
Abstract [en]

The spouses of people suffering from dementia are commonly first-in-line caregivers. This canhave a considerable effect on their own lives, health and marriages. Several studies havefocused on spouses’experiences, but very few have focused in any depth on their descrip-tions of themselves as subjects. Therefore, the aim of this study is to describe how spousecaregivers can express themselves when living with and caring for their partners withdementia. The study has a qualitative approach with a discourse analysis design and usesanalytical tools such as rhetoric, subject positions and categorization. The results reveal threesubject positions: as an actor, as a parent and as a survivor. The results show that as spousesstruggle with external and internal clashes as subjects, they therefore need to develop copingstrategies. They also experience pronounced loneliness and a risk to their own health. There isthus a need to support these spouses as individuals in their differing and changing needs.

Place, publisher, year, edition, pages
2018. Vol. 13, no 1, p. 1748-2631, article id ZQHW 1554025
Keywords [en]
Alzheimer ’ s; caregiving; discourse analysis; dementia; experience; interviews; subject positions; spouses; qualitative
National Category
Medical and Health Sciences
Research subject
Public Health Sciences
Identifiers
URN: urn:nbn:se:mdh:diva-41810DOI: 10.1080/17482631.2018.1554025ISI: 000453030700001PubMedID: 30704369Scopus ID: 2-s2.0-85058576525OAI: oai:DiVA.org:mdh-41810DiVA, id: diva2:1273533
Available from: 2018-12-21 Created: 2018-12-21 Last updated: 2019-11-07Bibliographically approved

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That mr. Alzheimer ... you never know what he ’s up to, but what about me? A discourse analysis of how Swedish spouse caregivers can make their subject positions understandable and meaningful(1610 kB)77 downloads
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Åberg [Engström], AnnicaSummer Meranius, MartinaMarmstål Hammar, Lena

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