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Significant others' influence on participation in everyday life: - the perspectives of persons with early diagnosed rheumatoid arthritis
Division of Occupational Therapy, Department of Social and Welfare Studies, Linkoping University, Norrköping, Sweden.
Division of Occupational Therapy, Department of Social and Welfare Studies, Department of Activity and Health, Department of Rehabilitation Medicine, Department of Medical and Health Sciences, Linköping University, Sweden.
Division of Occupational Therapy, Department of Social and Welfare Studies, Link€oping University, Norrk€oping, Sweden.
Department of Activity and Health, Department of Rehabilitation Medicine, Department of Medical and Health Sciences, Department of Rheumatology, Department of Clinical and Experimental Medicine, Linköping University, Linköping, Sweden. (TIRA)
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Abstract [en]

ABSTRACT Purpose: To describe the meaning of significant others in relation to participation in everyday life of persons with early diagnosed rheumatoid arthritis (RA). Materials and methods: Fifty-nine persons participated in this interview study. Inclusion criteria were three years’ experience of diagnosis and being of working age. Semi-structured interviews were conducted using critical incident technique (CIT), and the material was analysed using content analysis. Results: Four categories were revealed: (1) My early RA causes activity adaptations for us all, referring to the person and significant others modifying activities. (2) Making the significant others balance between shortfalls and participation, where the participants distinguished between needing help and feeling involved in activities. (3) Physical interactions with significant others, referring to both the problematic and manageable impact RA could have on body contact. (4) Emotions in relation to activities with others, where participants described feelings of failing others, and anxiety about future activities. Conclusions: For persons with early diagnosed RA, significant others can be both hindering and facilitating for participation in everyday life. As a clinical implication, it is valuable to identify how significant others can be involved in the rehabilitation process, to enhance participation in everyday life early in the disease process.

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URN: urn:nbn:se:mdh:diva-41286OAI: oai:DiVA.org:mdh-41286DiVA, id: diva2:1260704
Available from: 2018-11-05 Created: 2018-11-05 Last updated: 2018-12-14Bibliographically approved

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