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An exploration of the phenomenon of formal care from the perspective of middle-aged heart failure patients
Mälardalen University, Department of Caring and Public Health Sciences. Växjö University.ORCID iD: 0000-0003-0667-7111
Mälardalen University, Department of Caring and Public Health Sciences.ORCID iD: 0000-0002-3307-6779
Mälardalen University, Department of Caring and Public Health Sciences.
2007 (English)In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, Vol. 6, no 2, p. 121-129Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Despite a considerable amount of research into heart failure there remains a divergence between the care available and patient's needs. The predominant biomedical perspective is more focused on the disease rather than the patient. In order to deliver formal care appropriate to the needs of middle-aged patients with moderate-severe HF it is imperative to gain the perspective of the individual patient. AIMS: The aim of the current study was to explore and understand the phenomenon: Formal care as experienced from the perspective of middle-aged patients living with HF. METHODS: The study was performed using a lifeworld perspective. Data was collected in seven unstructured interviews with middle-aged people living with moderate-severe HF. Data was analysed using a phenomenological approach. RESULTS: Formal care, as experienced by middle-aged patients living with moderate to severe HF, means hope to once again be able to have access to life. However, the meaning of formal care is ambiguous, which signifies that care means both health and suffering at the same time. The essence's meaning constituents are: dependency of care, surrender to care and unclear participation. CONCLUSION: The experience of formal care means both well-being and suffering at the same time. Patients' suffering in relation to formal care can be reduced if formal carers act from an ethical patient perspective point of view and if carers regard patients' lived experiences.

Place, publisher, year, edition, pages
2007. Vol. 6, no 2, p. 121-129
Keywords [en]
Adaptation; Psychological, Adult, Aged, Attitude to Health, Decision Making, Empathy, Female, Health Services Needs and Demand, Heart Failure; Congestive/prevention & control/*psychology, Humans, Male, Middle Aged, Morale, Narration, Nursing Methodology Research, Patient-Centered Care, Power (Psychology), Professional Role/psychology, Professional-Patient Relations, Quality of Health Care/standards, Questionnaires, Self Concept, Severity of Illness Index, Social Support, Sweden
National Category
Nursing
Identifiers
URN: urn:nbn:se:mdh:diva-3671DOI: 10.1016/j.ejcnurse.2006.06.002PubMedID: 16877043Scopus ID: 2-s2.0-34248397631OAI: oai:DiVA.org:mdh-3671DiVA, id: diva2:116335
Available from: 2008-02-12 Created: 2008-02-12 Last updated: 2015-08-04Bibliographically approved
In thesis
1. När kroppen sätter gränser: En studie om att leva med hjärtsvikt i medelåldern
Open this publication in new window or tab >>När kroppen sätter gränser: En studie om att leva med hjärtsvikt i medelåldern
2008 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Alternative title[en]
When the body sets limits
Place, publisher, year, edition, pages
Växjö: Växjö University Press, 2008. p. 95
Series
Acta Wexionensia, ISSN 1404-4307 ; 140/2008
National Category
Nursing
Research subject
vårdvetenskap
Identifiers
urn:nbn:se:mdh:diva-18065 (URN)978-91-7636-593-9 (ISBN)
Public defence
2008-05-30, 10:00 (Swedish)
Opponent
Supervisors
Available from: 2013-01-25 Created: 2013-01-25 Last updated: 2015-06-29Bibliographically approved

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Nordgren, LenaAsp, Margareta

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