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När kroppen sätter gränser: En studie om att leva med hjärtsvikt i medelåldern
Växjö universitet.ORCID iD: 0000-0003-0667-7111
2008 (Swedish)Doctoral thesis, comprehensive summary (Other academic)Alternative title
When the body sets limits (English)
Place, publisher, year, edition, pages
Växjö: Växjö University Press , 2008. , p. 95
Series
Acta Wexionensia, ISSN 1404-4307 ; 140/2008
National Category
Nursing
Research subject
vårdvetenskap
Identifiers
URN: urn:nbn:se:mdh:diva-18065ISBN: 978-91-7636-593-9 (print)OAI: oai:DiVA.org:mdh-18065DiVA, id: diva2:600625
Public defence
2008-05-30, 10:00 (Swedish)
Opponent
Supervisors
Available from: 2013-01-25 Created: 2013-01-25 Last updated: 2015-06-29Bibliographically approved
List of papers
1. Living with moderate-severe chronic heart failure as a middle-aged person
Open this publication in new window or tab >>Living with moderate-severe chronic heart failure as a middle-aged person
2007 (English)In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 17, no 1, p. 4-13Article in journal (Refereed) Published
Abstract [en]

In this article the authors describe a study focusing on middle-aged persons living with chronic heart failure (CHF), a group with which few studies have been conducted. They used the lifeworld perspective to focus on persons' lived experiences of the phenomenon, that is, living with moderate-severe CHF as a middle-aged person. They interviewed 7 middle-aged persons (4 men, 3 women; aged 38 to 65 years) and analyzed the data obtained using a phenomenological approach. The phenomenon's essence is described as a life situation characterized by a failing body, a life constantly under threat, a rapidly changing health condition, and an altered self-image, which implies that the persons live in a changed life situation. The essence was further illuminated by three meaning constituents: an ambiguity of the body, losing track of life, and balancing life. Knowledge from this study will help caregivers understand and support patients with this debilitating condition.

Keywords
chronic heart failure, middle age, illness experience, phenomenology
National Category
Nursing
Identifiers
urn:nbn:se:mdh:diva-10730 (URN)10.1177/1049732306296387 (DOI)000243072000002 ()17170239 (PubMedID)2-s2.0-33845388486 (Scopus ID)
Available from: 2010-11-02 Created: 2010-11-02 Last updated: 2017-12-12Bibliographically approved
2. An exploration of the phenomenon of formal care from the perspective of middle-aged heart failure patients
Open this publication in new window or tab >>An exploration of the phenomenon of formal care from the perspective of middle-aged heart failure patients
2007 (English)In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, Vol. 6, no 2, p. 121-129Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Despite a considerable amount of research into heart failure there remains a divergence between the care available and patient's needs. The predominant biomedical perspective is more focused on the disease rather than the patient. In order to deliver formal care appropriate to the needs of middle-aged patients with moderate-severe HF it is imperative to gain the perspective of the individual patient. AIMS: The aim of the current study was to explore and understand the phenomenon: Formal care as experienced from the perspective of middle-aged patients living with HF. METHODS: The study was performed using a lifeworld perspective. Data was collected in seven unstructured interviews with middle-aged people living with moderate-severe HF. Data was analysed using a phenomenological approach. RESULTS: Formal care, as experienced by middle-aged patients living with moderate to severe HF, means hope to once again be able to have access to life. However, the meaning of formal care is ambiguous, which signifies that care means both health and suffering at the same time. The essence's meaning constituents are: dependency of care, surrender to care and unclear participation. CONCLUSION: The experience of formal care means both well-being and suffering at the same time. Patients' suffering in relation to formal care can be reduced if formal carers act from an ethical patient perspective point of view and if carers regard patients' lived experiences.

Keywords
Adaptation; Psychological, Adult, Aged, Attitude to Health, Decision Making, Empathy, Female, Health Services Needs and Demand, Heart Failure; Congestive/prevention & control/*psychology, Humans, Male, Middle Aged, Morale, Narration, Nursing Methodology Research, Patient-Centered Care, Power (Psychology), Professional Role/psychology, Professional-Patient Relations, Quality of Health Care/standards, Questionnaires, Self Concept, Severity of Illness Index, Social Support, Sweden
National Category
Nursing
Identifiers
urn:nbn:se:mdh:diva-3671 (URN)10.1016/j.ejcnurse.2006.06.002 (DOI)16877043 (PubMedID)2-s2.0-34248397631 (Scopus ID)
Available from: 2008-02-12 Created: 2008-02-12 Last updated: 2015-08-04Bibliographically approved
3. Support as experienced by men living with heart failure in middle age: A phenomenological study
Open this publication in new window or tab >>Support as experienced by men living with heart failure in middle age: A phenomenological study
2008 (English)In: International Journal of Nursing Studies, ISSN 0020-7489, Vol. 45, no 9, p. 1344-1354Article in journal (Other academic) Published
Abstract [en]

BACKGROUND: Men living with heart failure (HF) in middle-age experience restrictions limiting their work capacity and/or social activities. To adjust to the life-situation they need support. The meaning of the phenomenon of support is not well known. Thus, formal carers may find it problematic to know how to support patients. AIM: The aim of the current study was to uncover and describe the meaning of the phenomenon of support as experienced by men living with HF in middle age. DESIGN: The study used a caring science perspective and a reflective lifeworld approach based on phenomenological philosophy. PARTICIPANTS AND SETTINGS: Nine men, aged 49-64 years and diagnosed with HF, were recruited from two outpatient HF clinics in Sweden. METHODS: Interviews were used for data gathering. Data were analyzed by means of reflective lifeworld research. FINDINGS: The essence of support as experienced by men living with HF in middle age can be understood as security, and a sense of having control over body and situation. Support is realized in the men's relations to other people; there is however tension between what is supportive and what is not, meaning that even though intentions are good, intended support involves limitations, uncertainties or insecurity. The essence is illuminated by the following meaning constitutes: Support-a tenuous security; Medications-a support for life; Conditional support within the context of formal care; and, Information and knowledge. CONCLUSIONS: The meaning of support as experienced by men living with HF in middle age is multi-dimensional, qualitative and contextual. When the men are supported they gain a sense of security and control, giving them strength to handle their life-situation. A lifeworld-led approach in the context of formal care can help formal carers support men living with HF in middle age.

Keywords
heart failure, phenomenology, support
National Category
Nursing
Identifiers
urn:nbn:se:mdh:diva-2915 (URN)10.1016/j.ijnurstu.2007.10.005 (DOI)000259625400009 ()18022175 (PubMedID)2-s2.0-50049093509 (Scopus ID)
Available from: 2008-03-17 Created: 2008-03-17 Last updated: 2015-06-26Bibliographically approved
4. Safety and understanding: Support as experienced by women living with heart failure in middle age
Open this publication in new window or tab >>Safety and understanding: Support as experienced by women living with heart failure in middle age
2008 (Swedish)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 3, no 1, p. 39-51Article in journal (Refereed) Published
Abstract [en]

To reformulate and adjust to their life-situation, women living with heart failure (HF) need help and support. However, the actual meaning of the phenomenon of support is not yet well described. The aim of the study was to uncover the meaning of the phenomenon of support as experienced by women living with HF in middle age. A reflective lifeworld approach within the perspective of caring science was used. Six women (aged 33-61 years) were interviewed. The findings show that the essence of support can be understood as safety, depicted by understanding. However, there is tension between what is supportive and what is not, meaning that even though intentions are good, intended support may involve limitations, uncertainties or insecurity. The meaning of support is further illuminated in the following constituents: "knowledge and understanding", "finding balance", "ambiguity of relationships" and "support and formal care - a matter of trust and mistrust". Findings demonstrate the need for carers to find an approach that ensures both good quality medical care and, at the same time, acknowledges the uniqueness of each individual.

Keywords
Support, heart failure, women, middle aged, caring science, phenomenology
National Category
Nursing
Identifiers
urn:nbn:se:mdh:diva-2916 (URN)10.1080/17482620701714780 (DOI)2-s2.0-50549083493 (Scopus ID)
Available from: 2008-02-13 Created: 2008-02-13 Last updated: 2017-12-14Bibliographically approved

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