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Parents with Intellectual Disability Reporting on Factors Affecting their Caregiving in the Wake of the Covid-19 Pandemic: A Qualitative Study
Department of Psychology, Stockholm university; SUF kunskapscenter Region Uppsala.
Uppsala universitet, Centrum för socialt arbete - CESAR.ORCID iD: 0000-0002-6504-0877
Uppsala universitet, Centrum för socialt arbete - CESAR.ORCID iD: 0000-0002-6410-1332
2022 (English)In: JARID: Journal of applied research in intellectual disabilities, ISSN 1360-2322, E-ISSN 1468-3148, Vol. 35, no 6, p. 1380-1389Article in journal (Refereed) Published
Abstract [en]

Background: Parents with intellectual disability are vulnerable to parenting stress and overwhelming life events. The Covid-19 pandemic constitutes a potentially overwhelming event, but there is little knowledge concerning the effects on parents’ caregiving. The present study aimed to fill this gap.

Method: Semi-structured interviews with ten Swedish parents with intellectual disability were analysed using thematic analysis.

Results: One broad caregiving-related theme: Increased caregiving demands and reduced resources for coping resulting in strained parent-child interactions and relationships. Four subthemes highlighted influential factors: Pandemic information; professional support; social relationships and informal support; and children’s school activities. Strained parent-child interactions were particularly common in the absence of adapted pandemic information, if professional and informal support were compromised, and if the parents had dealt with school-related changes.

Conclusions: Findings support contextual models of caregiving and a stress-resources perspective, and emphasize the importance of adapted information and support to parents with intellectual disability during crises.

Place, publisher, year, edition, pages
John Wiley & Sons , 2022. Vol. 35, no 6, p. 1380-1389
National Category
Social Sciences Interdisciplinary
Identifiers
URN: urn:nbn:se:mdh:diva-64303DOI: 10.1111/jar.13026ISI: 000851427600001PubMedID: 36207144Scopus ID: 2-s2.0-85136309607OAI: oai:DiVA.org:mdh-64303DiVA, id: diva2:1798965
Funder
Region Uppsala, Dnr 2021-00436Available from: 2023-09-20 Created: 2023-09-20 Last updated: 2024-01-23Bibliographically approved

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Tegler, Helena

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