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Staff’s and managers’ conceptions of participation for adults with profound intellectual disabilities or profound intellectual and multiple disabilities
Mälardalen University, School of Health, Care and Social Welfare.ORCID iD: 0000-0003-0305-7929
Stockholm University, Sweden.ORCID iD: 0000-0002-9273-2203
Dalarna University, Sweden.ORCID iD: 0000-0001-7832-2155
Mälardalen University, School of Health, Care and Social Welfare, Health and Welfare.ORCID iD: 0000-0002-9821-9945
2019 (English)In: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 21, no 1, p. 78-88Article in journal (Refereed) Published
Abstract [en]

One goal of disability policies in Sweden and other countries is to ensure that people with disabilities are afforded an equal level of daily life participation as other citizens. However, few studies have examined this in adults with profound intellectual disabilities (PID) or profound intellectual and multiple disabilities (PIMD). This study used a phenomenographic approach to interview managers and staff at a social care organisation in a medium-sized Swedish municipality. It aimed to elucidate and describe conceptions of participation to highlight conceptual variations. Divergent conceptualisations were found, reflecting a lack of organisational consensus about the meaning of participation. Trying to fulfil policy goals of daily life participation for adults with PID or PIMD without a common understanding of the meaning of participation is difficult, so people at all levels of an organisation need to have a shared understanding and definition of it.

Place, publisher, year, edition, pages
Stockholm University Press , 2019. Vol. 21, no 1, p. 78-88
Keywords [en]
Participation, Phenomenography, Profound intellectual and multiple disabilities, Profound intellectual disability, Social care, Article, caregiver support, conception, daily life activity, health care access, health care personnel, human, intellectual impairment, interview, manager, mental health service, perception, qualitative research, quality of life, semi structured interview, social status, social work, staff
National Category
Health Sciences
Identifiers
URN: urn:nbn:se:mdh:diva-46555DOI: 10.16993/sjdr.53Scopus ID: 2-s2.0-85068443584OAI: oai:DiVA.org:mdh-46555DiVA, id: diva2:1379247
Available from: 2019-12-16 Created: 2019-12-16 Last updated: 2019-12-16Bibliographically approved

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Talman, LenaWilder, JennyStier, JonasGustafsson, Christine

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