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Participation in daily life for adults with profound intellectual (and multiple) disabilities: How high do they climb on Shier's ladder of participation?
Mälardalens högskola, Akademin för hälsa, vård och välfärd, Hälsa och välfärd. (Welfare research; Prolonged Independent Living (PriLiv))ORCID-id: 0000-0003-0305-7929
Mälardalens högskola, Akademin för utbildning, kultur och kommunikation, Utbildningsvetenskap och Matematik. Stockholm Univ, Stockholm, Sweden..ORCID-id: 0000-0002-9273-2203
Mälardalens högskola, Akademin för ekonomi, samhälle och teknik. Mälardalens högskola, Akademin för hälsa, vård och välfärd, Hälsa och välfärd. Dalarna Univ, Falun, Sweden..ORCID-id: 0000-0001-7832-2155
Mälardalens högskola, Akademin för hälsa, vård och välfärd, Hälsa och välfärd. (PRILIV)ORCID-id: 0000-0002-9821-9945
2019 (engelsk)Inngår i: Journal of Intellectual Disabilities, ISSN 1744-6295, E-ISSN 1744-6309, artikkel-id UNSP 1744629519863959Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Participation is the goal of Swedish disability policy, but it is difficult to achieve for adults with profound intellectual (and multiple) disabilities (PI(M)D). Since these adults are dependent on others in every aspect of their lives, others control their ability to participate in everyday life decisions. This study used observations, analyzed with Shier's ladder of participation, to elucidate and describe participation in daily life for adults with PI(M)D living in a group home. The results showed that the adults often reached the first three levels of Shier's ladder, one adult reached the fourth level once, and no one reached the fifth level. Participation on a higher level, therefore, seems hard to reach for adults. Staff members' attitudes toward the adults' capability can also be a barrier to participation. Applying Shier's ladder of participation can provide valuable information that might lead to increased participation in daily life for adults with PI(M)D.

sted, utgiver, år, opplag, sider
SAGE PUBLICATIONS LTD , 2019. artikkel-id UNSP 1744629519863959
Emneord [en]
group home, participation, profound intellectual (and multiple) disabilities, Shier's ladder of participation
HSV kategori
Identifikatorer
URN: urn:nbn:se:mdh:diva-45010DOI: 10.1177/1744629519863959ISI: 000478327200001PubMedID: 31319749OAI: oai:DiVA.org:mdh-45010DiVA, id: diva2:1343020
Tilgjengelig fra: 2019-08-15 Laget: 2019-08-15 Sist oppdatert: 2019-11-17

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Talman, LenaWilder, JennyStier, JonasGustafsson, Christine

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