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Publications (4 of 4) Show all publications
Söderman, M., Pietilä Rosendahl, S. & Sallstrom, C. (2018). Caring and Uncaring Encounters between Assistant Nurses and Immigrants with Dementia Symptoms in Two Group Homes in Sweden: an Observational Study. Journal of Cross-Cultural Gerontology, 33(3), 299-317
Open this publication in new window or tab >>Caring and Uncaring Encounters between Assistant Nurses and Immigrants with Dementia Symptoms in Two Group Homes in Sweden: an Observational Study
2018 (English)In: Journal of Cross-Cultural Gerontology, ISSN 0169-3816, E-ISSN 1573-0719, Vol. 33, no 3, p. 299-317Article in journal (Refereed) Published
Abstract [en]

Background: The total number of people with dementia symptoms is expected to double every 20years and there will also be an increase in the number of older immigrants in several countries. There are considerable deficiencies in the present knowledge of how to conduct well-functioning health care for immigrants with dementia symptoms. The aim of this study was to explore caring and uncaring encounters between assistant nurses and immigrants in two group homes for persons with dementia symptoms in Sweden: a Finnish-speaking as well as a Swedish-speaking context. In addition, this study aims to describe how caring and uncaring encounters are manifested in these two contexts according to Halldorsdottir's theory of Caring and Uncaring encounters. Method: Descriptive field notes from 30 separate observations were analyzed using qualitative deductive content analysis. Results: The main category caring encounters focused on reaching out to initiate connection through communication, removing masks of anonymity by acknowledging the unique person, acknowledgment of connection by being personal. Reaching a level of truthfulness by being present and showing respect, raising the level of solidarity by equality and true negotiation of care, based on the residents' needs. The main category, uncaring encounters, focused on disinterest in and insensitivity towards the other, coldness in the connection and lack of humanity in care situations. The observations showed that caring encounters occurred more in the Finnish-speaking context and uncaring encounters more often in the Swedish context. Conclusion: Encounters could be caring, uncaring, and carried out using a person-centered approach. Communication and relationships could be facilitated using the same language but also through learning to interpret residents' needs and desires.

Place, publisher, year, edition, pages
SPRINGER, 2018
Keywords
Caring, Dementia, Encounter, Immigrant, Qualitative, Uncaring
National Category
Health Sciences
Identifiers
urn:nbn:se:mdh:diva-41822 (URN)10.1007/s10823-018-9351-y (DOI)000443366400005 ()29931458 (PubMedID)2-s2.0-85048765345 (Scopus ID)
Available from: 2018-12-27 Created: 2018-12-27 Last updated: 2019-01-04Bibliographically approved
Söderman, M. & Rosendahl, S. (2016). Caring for the ethnic elders living with dementia – experiences of nursing staff. Journal of Cross-Cultural Gerontology, 31(3), 311-326
Open this publication in new window or tab >>Caring for the ethnic elders living with dementia – experiences of nursing staff
2016 (English)In: Journal of Cross-Cultural Gerontology, ISSN 0169-3816, E-ISSN 1573-0719, Vol. 31, no 3, p. 311-326Article in journal (Refereed) Published
Abstract [en]

The total number of persons living with dementia is estimated to double every 20 years and ageing migrant populations are growing in several countries. There are gaps in the health and social care of people from other countries, regardless of the efforts made when someone has a dementia diagnosis; similarly, receiving care in sheltered accommodation is less common. The aim of this study was to explore and describe the nursing staff’s experiences of caring for non-Swedish speaking persons living with dementia in a Finnish speaking group home in relation to a Swedish speaking group home in Sweden. 27 qualitative semi-structured interviews were analysed using qualitative content analyses. The first main category, “communication”, concentrated on language abilities and deficiencies, non-verbal language, highlighting the consequences of not understanding and the benefits of a common language. The second main category, “culturally oriented activities”, focused on being served traditional food, celebrating holidays at the group home, the importance of traditions and the importance of familiar music as cultural elements. The Swedish speaking nursing staff could provide qualitative and equitable care, but the challenge was greater for them than for the bilingual nursing staff who spoke the same language as the residents.

Place, publisher, year, edition, pages
Springer Science+Business Media B.V., 2016
Keywords
Bilingual nursing, Dementia, Immigrant, Qualitative
National Category
Medical and Health Sciences Health Sciences
Research subject
Care Sciences
Identifiers
urn:nbn:se:mdh:diva-32262 (URN)10.1007/s10823-016-9293-1 (DOI)000408863800006 ()27287438 (PubMedID)2-s2.0-84973638051 (Scopus ID)
Available from: 2016-06-29 Created: 2016-06-29 Last updated: 2019-06-18Bibliographically approved
Pietilä Rosendahl, S., Söderman, M. & Mazaheri, M. (2016). Immigrants with dementia in Swedish residential care: An exploratory study of the experiences of their family members and nursing staff. BMC Geriatrics, 16(18)
Open this publication in new window or tab >>Immigrants with dementia in Swedish residential care: An exploratory study of the experiences of their family members and nursing staff
2016 (English)In: BMC Geriatrics, ISSN 1471-2318, E-ISSN 1471-2318, Vol. 16, no 18Article in journal (Refereed) Published
Abstract [en]

Background

Worldwide, there is a growing population of older people who develop dementia in a country other than that of their origin. When their dementia has reached an advanced stage, residential care is most often needed. People with dementia in Sweden are often cared for in group homes. For immigrants, this may mean a linguistically challenging care environment for both healthcare staff and the patients’ family members.

The aim of this study was to explore and describe the experiences of family members and professional caregivers regarding the care provided to immigrants with dementia in group homes in Sweden.

Methods

An exploratory, descriptive study with a qualitative approach was chosen. In-depth semi-structured interviews were conducted with nine professional caregivers and five family members of people with dementia with Finnish, Estonian, Hungarian and Ingrian backgrounds; all were chosen purposefully. All people with dementia had lost their Swedish language skills as their second language. The data was analysed using qualitative content analysis.

Results

Three main categories and seven subcategories were identified. The first main category: A new living situation comprised the subcategories: adjusting to new living arrangements and expectations regarding activities and traditional food at the group home, the second main category: Challenges in communication with the subcategories: limited communication between the immigrant with dementia and the Swedish-speaking nursing staff and the consequences of linguistic misunderstandings and nuanced communication in a common language and the third main category: The role of the family member at the group home with the subcategories: a link to the healthy life story of the family member with dementia andan expert and interpreter for the nursing staff.

Conclusions

The family member played a crucial role in the lives of immigrants with dementia living in a group home by facilitating communication between the nursing staff and the PWD and also by making it possible for PWD to access the cultural activities they wanted and which professional caregivers were either not able to recognise as needed or could not deliver.

Place, publisher, year, edition, pages
Springer, 2016
Keywords
communication. dementia, family member, group home, nursing
National Category
Health Sciences
Research subject
Care Sciences
Identifiers
urn:nbn:se:mdh:diva-30732 (URN)10.1186/s12877-016-0200-y (DOI)000368075700002 ()26772758 (PubMedID)2-s2.0-84954413376 (Scopus ID)
Available from: 2016-01-17 Created: 2016-01-17 Last updated: 2019-06-18Bibliographically approved
Söderman, M. & Pietilä Rosendahl, S. (2014). Caring for the ethnic elders suffering from dementia – experiences of nursing staff. In: Caring for the ethnic elders suffering from dementia – experiences of nursing staff: . Paper presented at Conference Health, Social Welfare and Co-production at Mälardalen University in Eskilstuna 9-10th September , 2014.
Open this publication in new window or tab >>Caring for the ethnic elders suffering from dementia – experiences of nursing staff
2014 (English)In: Caring for the ethnic elders suffering from dementia – experiences of nursing staff, 2014Conference paper, Oral presentation with published abstract (Refereed)
Keywords
bilingual nursing, dementia, ethnic elders, qualitative
National Category
Nursing
Research subject
Care Sciences
Identifiers
urn:nbn:se:mdh:diva-26702 (URN)
Conference
Conference Health, Social Welfare and Co-production at Mälardalen University in Eskilstuna 9-10th September , 2014
Available from: 2014-11-28 Created: 2014-11-28 Last updated: 2017-01-25
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0001-5391-623X

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