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Gustafsson, Christine, DocentORCID iD iconorcid.org/0000-0002-9821-9945
Publications (10 of 39) Show all publications
Åkerlind, C., Martin, L. & Gustafsson, C. (2019). Care managers’ perceptions of eHomecare: a qualitative interview study. European Journal of Social Work (4), 634-646
Open this publication in new window or tab >>Care managers’ perceptions of eHomecare: a qualitative interview study
2019 (English)In: European Journal of Social Work, ISSN 1369-1457, E-ISSN 1468-2664, no 4, p. 634-646Article in journal (Refereed) Published
Abstract [en]

To implement information and communication technology (ICT) in elderlycare can be a challenge for healthcare organisations. In Sweden, caremanagers (CMs) are responsible for offering ICT as a new part ofhomecare, i.e. eHomecare. The aim of this study was to focus on CMs’perspectives and describe their perceptions of eHomecare. The studyhas a qualitative approach. Semi-structured interviews based onvignettes were conducted with 12 CMs in a medium-sized municipalityin central Sweden. Data were analysed using qualitative analysis. Thefindings showed that CMs are influenced by surrounding organisationsand relatives in their decision to grant eHomecare. There were alsodifficulties in CMs’ management of eHomecare. Furthermore, eHomecarewas perceived to improve the quality of everyday life for older. It isunderstood that the management of eHomecare is a challenging taskfor CMs and a complex mission. Interactions among CMs, relatives, careproviders, and other factors as for example CMs’ own attitudes have animpact on CMs’ decisions.

Keywords
Care managers; eHomecare; elderly care; information and communication technology; vignette method, biståndshandläggare; eHemtjänst; informationsoch kommunikationsteknik; vignettmetod; äldreomsorg
National Category
Medical and Health Sciences Health Sciences
Research subject
Care Sciences
Identifiers
urn:nbn:se:mdh:diva-36709 (URN)10.1080/13691457.2017.1366893 (DOI)000470879000009 ()2-s2.0-85028556551 (Scopus ID)
Projects
Doktorandprojekt
Available from: 2017-10-10 Created: 2017-10-10 Last updated: 2019-06-27Bibliographically approved
Johansson-Pajala, R.-M., Thommes, K., Hoppe, J. A., Tuisku, O., Hennala, L., Pekkarinen, S., . . . Gustafsson, C. (2019). Improved Knowledge Changes the Mindset: Older Adults’ Perceptions of Care Robots. In: Lecture Notes in Computer Science, vol. 11592: . Paper presented at 5th International Conference on Human Aspects of IT for the Aged Population, ITAP 2019, held as part of the 21st International Conference on Human-Computer Interaction, HCI International 2019; Orlando; United States; 26 July 2019 through 31 July 2019 (pp. 212-227). Springer Verlag
Open this publication in new window or tab >>Improved Knowledge Changes the Mindset: Older Adults’ Perceptions of Care Robots
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2019 (English)In: Lecture Notes in Computer Science, vol. 11592, Springer Verlag , 2019, p. 212-227Conference paper, Published paper (Refereed)
Abstract [en]

This paper explores Finnish, German and Swedish older adults’ perceptions of a future welfare service with increased use of welfare technologies, specifically care robots. The issues are the rapid digitalization and development of health and welfare technology, which presently is mainly technology driven (not need or user driven), and the demographic challenge. The aim of the study was to explore older adults’ perception of the future use of welfare technology or care robots. A qualitative approach with focus group discussions was employed, followed by thematic analysis. The results are presented in four overall themes: the impact on daily life for older adults and professional caregivers, codes of practice and terms of use, dissemination of information and knowledge, and conditions for successful implementation. There were significant differences in the informants’ attitudes toward and knowledge about care robots. However, the informants’ attitudes appeared to change during the focus groups and in general, became more positive. Authentic needs, which care robots could support, refer to independence, safety and security, and the ability to manage or ease daily life or working life. The results suggest that older adults, after receiving relevant information, were open to the idea of being supported by care robots in their daily lives. 

Place, publisher, year, edition, pages
Springer Verlag, 2019
Series
Lecture Notes in Computer Science, ISSN 0302-9743 ; 11592
National Category
Health Sciences Medical Engineering
Identifiers
urn:nbn:se:mdh:diva-44973 (URN)10.1007/978-3-030-22012-9_16 (DOI)2-s2.0-85069817821 (Scopus ID)9783030220112 (ISBN)
Conference
5th International Conference on Human Aspects of IT for the Aged Population, ITAP 2019, held as part of the 21st International Conference on Human-Computer Interaction, HCI International 2019; Orlando; United States; 26 July 2019 through 31 July 2019
Available from: 2019-08-08 Created: 2019-08-08 Last updated: 2019-11-17
Zander, V., Johansson-Pajala, R.-M. & Gustafsson, C. (2019). Methods to evaluate perspectives of safety, independence, activity, and participation in older persons using welfare technology. A systematic review. Disability and Rehabilitation: Assistive Technology
Open this publication in new window or tab >>Methods to evaluate perspectives of safety, independence, activity, and participation in older persons using welfare technology. A systematic review
2019 (English)In: Disability and Rehabilitation: Assistive Technology, ISSN 1748-3107, E-ISSN 1748-3115Article in journal (Refereed) Published
Abstract [en]

Purpose: To conduct a systematic review of existing methods to evaluate the individual aspects of welfare technology from the perspectives of independence, safety, activity, and participation. Furthermore, the study aimed to describe outcomes that have been the focus of previous research to evaluate individual aspects of welfare technology in older persons living in ordinary housing. Materials and methods: A systematic literature review in PubMed, CINAHL Plus, PsycINFO, Scopus, and Web of Science. Studies selected were those that explored the use of assistive and welfare technology devices from older persons’ perspectives, and which considered the concepts of independence, safety, activity and participation, and quality of life. Results: A broad spectrum of instruments was applied in the studies. For independence, three questionnaires were used in the identified studies. For safety, one instrument was used in two versions. To study activity and participation as well as quality of life, several scales were used. Additionally, several studies included qualitative approaches for evaluation, such as interviews, or posed one or more questions regarding the effects of welfare technology. Conclusions: The integration of digital assistive and welfare technology should be based on the needs of older persons, and those needs must be assessed using reliable and relevant instruments. The heterogeneity of the target group, i.e., older persons, together with the fact that assessments must give consideration to identifying goals, obstacles, and risks as well as users’ preferences, implies a person-centred approach.

National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:mdh:diva-42746 (URN)10.1080/17483107.2019.1574919 (DOI)30786779 (PubMedID)
Projects
Hjälpmedel och välfärdsteknik i tre dimensioner - HV3D
Available from: 2019-02-21 Created: 2019-02-21 Last updated: 2019-11-10
Talman, L., Wilder, J., Stier, J. & Gustafsson, C. (2019). Participation in daily life for adults with profound intellectual (and multiple) disabilities: How high do they climb on Shier's ladder of participation?. Journal of Intellectual Disabilities, Article ID UNSP 1744629519863959.
Open this publication in new window or tab >>Participation in daily life for adults with profound intellectual (and multiple) disabilities: How high do they climb on Shier's ladder of participation?
2019 (English)In: Journal of Intellectual Disabilities, ISSN 1744-6295, E-ISSN 1744-6309, article id UNSP 1744629519863959Article in journal (Refereed) Published
Abstract [en]

Participation is the goal of Swedish disability policy, but it is difficult to achieve for adults with profound intellectual (and multiple) disabilities (PI(M)D). Since these adults are dependent on others in every aspect of their lives, others control their ability to participate in everyday life decisions. This study used observations, analyzed with Shier's ladder of participation, to elucidate and describe participation in daily life for adults with PI(M)D living in a group home. The results showed that the adults often reached the first three levels of Shier's ladder, one adult reached the fourth level once, and no one reached the fifth level. Participation on a higher level, therefore, seems hard to reach for adults. Staff members' attitudes toward the adults' capability can also be a barrier to participation. Applying Shier's ladder of participation can provide valuable information that might lead to increased participation in daily life for adults with PI(M)D.

Place, publisher, year, edition, pages
SAGE PUBLICATIONS LTD, 2019
Keywords
group home, participation, profound intellectual (and multiple) disabilities, Shier's ladder of participation
National Category
Occupational Therapy Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:mdh:diva-45010 (URN)10.1177/1744629519863959 (DOI)000478327200001 ()31319749 (PubMedID)
Available from: 2019-08-15 Created: 2019-08-15 Last updated: 2019-11-17
Talman, L., Wilder, J., Stier, J. & Gustafsson, C. (2019). Staff members and managers’ views of the conditions for the participation of adults with profound intellectual and multiple disabilities. JARID: Journal of applied research in intellectual disabilities, 32(1), 143-151
Open this publication in new window or tab >>Staff members and managers’ views of the conditions for the participation of adults with profound intellectual and multiple disabilities
2019 (English)In: JARID: Journal of applied research in intellectual disabilities, ISSN 1360-2322, E-ISSN 1468-3148, Vol. 32, no 1, p. 143-151Article in journal (Refereed) Published
Abstract [en]

Background

Participation is a central aspect of quality of life, and it is indicative of high‐quality outcomes for people with intellectual disabilities. However, participation is difficult to achieve for adults with profound intellectual and multiple disabilities.

Aim

To describe staff members’ perceptions of what participation means for adults with profound intellectual and multiple disabilities.

Method

Using a phenomenographic approach, 27 interviews were analysed resulting in variations in the conditions for participation.

Results

The interviews revealed conditions for participation at individual, staff and organisational levels.

Conclusion

Participation appears to be an un‐reflected phenomenon, and several conditions must be met to achieve it. The conditions are experienced being fundamental for adults within the target group to achieve any kind of participation. The staff members and managers’ perceptions of participation as conditional can make it more difficult for adults within the target group to achieve the Swedish disability policy goal of participation.

National Category
Social Work
Identifiers
urn:nbn:se:mdh:diva-40175 (URN)10.1111/jar.12516 (DOI)000458679000013 ()29998545 (PubMedID)2-s2.0-85050675304 (Scopus ID)
Available from: 2018-07-03 Created: 2018-07-03 Last updated: 2019-11-17
Åkerlind, C., Martin, L. & Gustafsson, C. (2018). eHomecare and safety: The experiences of older patients and their relatives. Geriatric Nursing (2), 178-185
Open this publication in new window or tab >>eHomecare and safety: The experiences of older patients and their relatives
2018 (English)In: Geriatric Nursing, ISSN 0197-4572, E-ISSN 1528-3984, no 2, p. 178-185Article in journal (Refereed) Published
Abstract [en]

The study's aim was to extend descriptions of how older patients with granted eHomecare and their relatives understand safety, and further to describe how they experience safety in everyday life. The study was conducted in Sweden. The participants were 12 older patients who had been provided with eHomecare and 8 relatives. Data were collected by semi-structured individual interviews. A conceptual framework of safety was used and a qualitative content analysis was conducted in a deductive and an inductive phase. The deductive results are presented in predefined categories: perceived sense of safety, disturbance and threats, re-establishing safety, and new safety. The inductive analysis resulted in two main categories: safety as part of everyday life and eHomecare as safety. The results show that eHomecare can promote safety for older patients and their relatives. Existing doubts and ethical concerns about the service can be minimized by providing adequate information.

Keywords
eHomecare, information and communication technology, older patients, relatives, safety
National Category
Medical and Health Sciences Health Sciences
Research subject
Care Sciences
Identifiers
urn:nbn:se:mdh:diva-36711 (URN)10.1016/j.gerinurse.2017.08.004 (DOI)000431606800008 ()28988833 (PubMedID)2-s2.0-85030539695 (Scopus ID)
Projects
Doktorand projekt
Available from: 2017-10-10 Created: 2017-10-10 Last updated: 2019-11-17
Talman, L., Gustafsson, C., Stier, J. & Wilder, J. (2018). Staffs’ documentation of participation for adults with profound intellectualdisability or profound intellectual and multiple disabilities. Disability and Rehabilitation, 40(21), 2527-2537
Open this publication in new window or tab >>Staffs’ documentation of participation for adults with profound intellectualdisability or profound intellectual and multiple disabilities
2018 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 40, no 21, p. 2527-2537Article in journal (Refereed) Published
Abstract [en]

Purpose: This study investigated what areas of International Classification of Functioning, Disability and Health were documented in implementation plans for adults with profound intellectual disability or profound intellectual and multiple disabilities with focus on participation.

Methods: A document analysis of 17 implementation plans was performed and International Classification of Functioning, Disability and Health was used as an analytic tool.

Results: One hundred and sixty-three different codes were identified, especially in the components Activities and participation and Environmental factors. Participation was most frequently coded in the chapters Community, social and civic life and Self-care. Overall, the results showed that focus in the implementation plans concerned Self-care and Community, social and civic life. The other life areas in Activities and participation were seldom, or not at all, documented.

Conclusions: A deeper focus on participation in the implementation plans and all life areas in the component Activities and participation is needed. It is important that the documentation clearly shows what the adult wants, wishes, and likes in everyday life. It is also important to ensure that the job description for staff contains both life areas and individual preferences so that staff have the possibility to work to fulfill social and individual participation for the target group.

  • Implications for rehabilitation
  • There is a need for functioning working models to increase participation significantly for adults with profound intellectual disability or profound intellectual and multiple disabilities.

  • For these adults, participation is achieved through the assistance of others and support and services carried out must be documented in an implementation plan.

  • The International Classification of Functioning, Disability and Health can be used to support staff and ensure that information about the most important factors in an individual’s functioning in their environment is not omitted in documentation.

National Category
Social Work
Identifiers
urn:nbn:se:mdh:diva-40173 (URN)10.1080/09638288.2017.1340979 (DOI)000446621800007 ()28633543 (PubMedID)2-s2.0-85021127139 (Scopus ID)
Available from: 2018-07-03 Created: 2018-07-03 Last updated: 2019-11-17
Dag, M., Svanelöv, E. & Gustafsson, C. (2017). Experiences of using Bestic, an eating aid for people with intellectual disabilities. Journal of Intellectual Disability, 21(1), 87-98
Open this publication in new window or tab >>Experiences of using Bestic, an eating aid for people with intellectual disabilities
2017 (English)In: Journal of Intellectual Disability, ISSN 1744-6295, Vol. 21, no 1, p. 87-98Article in journal (Refereed) Published
Abstract [en]

This article reports on the results of a pilot study exploring whether and how the meal situations of persons with intellectual disabilities (PWIDs) in need of help and support during meal situations were affected by an eating aid. This article also analyzes how PWIDs and their assistants perceived their experiences of using an eating aid during meal situations. Data for the study were collected in interviews with PWIDs and their assistants. The results are presented in five themes: independence in the meal situation, motivation to use the eating aid, functions of the eating aid, social aspects of using the eating aid, and design corresponding to intellectual disability. The eating aid’s function, user-friendliness, and the assistants’ attitudes appear to be crucial for using the eating aid. Another important aspect is the introductory and training phase, which must be fundamentally adapted to suit the PWIDs ability to learn and understand. When these aspects are controlled, the eating aid can be a tool for increased independence during meal situations for PWIDs who are unable to move their arms or hands.

Keywords
eating aid, meal situation, independence, intellectual disability, assistants
National Category
Medical and Health Sciences Social Sciences Health Sciences
Research subject
Social Work
Identifiers
urn:nbn:se:mdh:diva-30606 (URN)10.1177/1744629515623167 (DOI)000408046000007 ()26705304 (PubMedID)2-s2.0-85011878116 (Scopus ID)
Available from: 2015-12-27 Created: 2015-12-27 Last updated: 2017-09-07Bibliographically approved
Gustafsson, C., Åkerberg, A., Folke, M., Therese, B. & Lindén, M. (2016). A method to create interdisciplinary health and welfare technology research projects: collaboration between academia and care providers. In: Johanna EMH van Bunswijk (Ed.), The one-page paper collection of the 10th World Conference of Gerontechnology: . Paper presented at ISG 2016, 10th World Conference of Gerontechnology (pp. 29-29). , 15
Open this publication in new window or tab >>A method to create interdisciplinary health and welfare technology research projects: collaboration between academia and care providers
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2016 (English)In: The one-page paper collection of the 10th World Conference of Gerontechnology / [ed] Johanna EMH van Bunswijk, 2016, Vol. 15, p. 29-29Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

We are facing an aging population1 and the need for health and welfare technology to meet the users’ ‘need is a fact. To meet this challenge, the Arena for Health and Welfare Technology (the Arena) was initiated at Mälardalen University in 2014, as a multi-professional and interdisciplinary research initiative2. The aim of the Arena is to increase the collaboration of the researchers from the University and the external actors to create benefit and value for the future health and welfare. The Arena organizes events promoting interaction and interdisciplinary research projects. At a thematic day in May 2016, a working process to effectively initiate interdisciplinary research based on the users ‘needs, was introduced. Method To increase the participation for the thematic day and for future research projects within health and welfare technology, a call offering a grand from the Arena fond was created for participants that attended the thematic day. This call was aimed at stimulate the creation of interdisciplinary research projects within health and welfare technology, with the purpose to write proposals for external research funding. Speakers from the region were invited, representing health and social care, companies within the health and welfare technology field and regional R&D units. The speakers were presenting real needs based from the view of the clients, patients, relatives, staffs and organizations, which possibly could be solved by using health and welfare technology. After the user need presentations, a working process was followed, led by the company Konkret Utveckling AB. The goal of the working process was to identify prioritized needs for the day, and in the continuation create project groups to be the basis for future interdisciplinary research projects. After identifying the prioritized user needs, project groups started work to specify the framework for the planned research project, and then make a short oral presentation to share and discuss their research ideas. Results & Discussion The theme day attracted more than 50 interested participants. At the end of the thematic day, four interdisciplinary groups, including new constellations of researchers exists. The aims of the four groups were based on prioritized user needs, presented by regional health and welfare representatives. Involved group participants, researchers and company representatives, represented different disciplines, for example engineering, sensor technology, robotics, pedagogics, physiotherapy, nursing, social work and economy. The working method used during the thematic day was successful, and can be used in developing initiatives for interdisciplinary health and welfare technology research projects based on the needs of the end users.

Keywords
welfare technology co-production
National Category
Health Sciences
Identifiers
urn:nbn:se:mdh:diva-34787 (URN)
Conference
ISG 2016, 10th World Conference of Gerontechnology
Available from: 2017-02-05 Created: 2017-02-05 Last updated: 2019-11-17
Gustafsson, C., Svanberg, C. & Müllersdorf, M. (2016). A robotic cat in dementia care - a pilot study. In: Johanna EMH van Bronswijk (Ed.), Gerontechnology The one-page paper collection of the 10th World Conference of Gerontechnology.: . Paper presented at ISG 2016. World Conference of Gerontechnology (pp. 151-151). , 15
Open this publication in new window or tab >>A robotic cat in dementia care - a pilot study
2016 (English)In: Gerontechnology The one-page paper collection of the 10th World Conference of Gerontechnology. / [ed] Johanna EMH van Bronswijk, 2016, Vol. 15, p. 151-151Conference paper, Published paper (Refereed)
Abstract [en]

The aim of the pilot study was to explore the re­actions of individuals with dementia to an interactive robotic cat and their relatives’ and professional caregivers’ experiences regarding its usability, function, and effects. Method The pilot study had an inter­vention, mixed-methods designand was conduct­ed in two stages. A quantitative single-case study2 including individuals with demen­tia, and a qualitative interview study3, including rela­tives and professional caregivers, were conducted. JustoCat® is an inter­active robotic pet developed using reminiscence therapy as a frame­work4. The development of JustoCat is based on promising work with the robotic seal, PARO5,6. However, the inventors of JustoCat assumed that a seal would not appeal in reminiscence therapy, a robotic cat was supposed appeal to individuals’ memories of cats. There was also the idea of downscaled, advanced tech­nology based on the hypothesis of a robotic cat’s functional reliability and lower cost. The construction of JustoCat (e.g., easy-to-change fur facilitating personalized use, wash­able fur) was developed following Swedish hygiene routines required in nursing homes and hospital set­tings. Results & Discussion In the Western world, the majority of individuals with dementia spend the last part of their lives in nursing homes or dementia care homes. Some individuals with dementia could increase their well-being with different thera­pies, for example massage, singing, music or by the company of pets. The current pilot study of four individuals with dementia and their relatives and professional caregivers showed interesting results. First, living with severe dementia is a situa­tion with ups and downs concerning quality of life and agitated behavior, as presented in the single-case study design. Second, the analysis of the interviews shows the positive effects of the robotic cat providing stimu­lation, comfort, and peace to indi­viduals living with dementia. Third, professional caregivers and relatives found the robotic cat to be a useful, reliable, and multifunctional tool in their relationships with the partici­pants6.

Keywords
welfare technology, social robots, dementia care
National Category
Health Sciences
Research subject
Care Sciences
Identifiers
urn:nbn:se:mdh:diva-34786 (URN)
Conference
ISG 2016. World Conference of Gerontechnology
Available from: 2017-02-05 Created: 2017-02-05 Last updated: 2018-01-26Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-9821-9945

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