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Bahner, J., Gäddman Johansson, R. & Svanelöv, E. (2023). Who Counts as a Sexual Subject?: The Impact of Ableist Rhetoric for People with Intellectual Disability in Sweden. Sexuality Research & Social Policy
Öppna denna publikation i ny flik eller fönster >>Who Counts as a Sexual Subject?: The Impact of Ableist Rhetoric for People with Intellectual Disability in Sweden
2023 (Engelska)Ingår i: Sexuality Research & Social Policy, ISSN 1868-9884, E-ISSN 1553-6610Artikel i tidskrift (Refereegranskat) Epub ahead of print
Abstract [en]

Introduction The ableist rhetoric around sexuality in disability services and beyond can hinder subjective sexual expression and have a powerful impact on health, self-esteem, and everyday life through internalized ableism, structural marginalization, and interpersonal discrimination. The aim of this study was to explore the ableist rhetoric of sexuality and its impacton sexual scripting for people with intellectual disability.

Methods A thematic analysis was carried out on data generated through ethnographic fieldwork at five sheltered accommodations and semi-structured interviews with ten individuals with intellectual disability.

Results The results show that people in Sweden with intellectual disability are desexualized within a moral order that ismaintained in post-institutional social care. Through this moral order, which is deeply embedded in an ableist rhetoric about sexual relationships, sexual scripting for disabled people is constrained both inside post-institutional social care initiatives, and in the broader community of “ableist environments.” In response, disabled people employ various strategies of resistance.

Conclusions A rhetoric of positive sexuality should be a guiding principle for successfully supporting the development of sexual agency on each individual’s own term.

Policy Implications We conclude by encouraging the development of initiatives that will empower and support people with intellectual disability to learn about their sexual rights and to find solutions that allow for development of sexual agencyand subjectivity.

Nyckelord
Sexuality; Ableism; Sexual scripts; Post-institutional disability services; Intellectual disability
Nationell ämneskategori
Sociologi Socialt arbete
Forskningsämne
socialt arbete
Identifikatorer
urn:nbn:se:mdh:diva-64154 (URN)10.1007/s13178-023-00873-5 (DOI)001056312400001 ()2-s2.0-85169313771 (Scopus ID)
Forskningsfinansiär
Mälardalens universitetUppsala universitetForte, Forskningsrådet för hälsa, arbetsliv och välfärd, 2018–01830
Tillgänglig från: 2023-09-04 Skapad: 2023-09-04 Senast uppdaterad: 2023-10-20Bibliografiskt granskad
Svanelöv, E. (2023). ‘You don’t want to do things alone’: children in low to middle schools talk about physical activity during recess time. Sport, Education and Society, 1-14
Öppna denna publikation i ny flik eller fönster >>‘You don’t want to do things alone’: children in low to middle schools talk about physical activity during recess time
2023 (Engelska)Ingår i: Sport, Education and Society, ISSN 1357-3322, E-ISSN 1470-1243, s. 1-14Artikel i tidskrift (Refereegranskat) Epub ahead of print
Abstract [en]

Many children nowadays do not meet the recommended amount of physical activity during a day and are more sedentary, which is accompanied by decreased physical and social health, and well-being. For some children, the school can be the only outlet for playful and organised physical activity. Almost all children attend school for a large part of their day, which makes school an important context for fostering positive attitudes towards physical activity. The purpose of this study was to explore how children in low to middle school talk about physical activity during recess time. A total of 18 students were interviewed using a semi-structured approach. The results show that physical activity during recess is talked about as forming social groups and community and a way to counteract loneliness. There are also contextual categories and behavioural codes in children's talk about physical activity that shape their tendency to participate, be admitted in, and denied from physical activity during recess. The results highlight the power of language and how it can position and shape children's relationship with, and expected outcome of, physical activity. Conclusively, the study shows that physical activity affects children's social well-being and identity construction.

Nyckelord
Recess, physical activity, school, physical education, language
Nationell ämneskategori
Pedagogik
Identifikatorer
urn:nbn:se:mdh:diva-64587 (URN)10.1080/13573322.2023.2246475 (DOI)001077011900001 ()2-s2.0-85168691982 (Scopus ID)
Tillgänglig från: 2023-10-25 Skapad: 2023-10-25 Senast uppdaterad: 2023-10-25Bibliografiskt granskad
Svanelöv, E. (2021). Being who one wants: constructing participation within discourses of (dis)ability. (Doctoral dissertation). Eskilstuna: Mälardalens högskola
Öppna denna publikation i ny flik eller fönster >>Being who one wants: constructing participation within discourses of (dis)ability
2021 (Engelska)Doktorsavhandling, sammanläggning (Övrigt vetenskapligt)
Abstract [en]

Background: Society is full of norms categorising and labelling people on the basis of abilities, traits, and appearance. People who deviate from normative ideals are subjected to practices of able-mindedness that can stigmatise and marginalise norm-breaking functionality and invoke intellectual disability labels. People on the margins of (dis)ability are often excluded from societal domains such as the labour market and sports and may need help and support in their daily living, which can limit opportunities for participation. As an effort to prevent exclusion for people with intellectual disability labels, specific dis-locations were created; that is, daily activity services, group homes and disability sports.

Aim: The overall aim of the dissertation was to explore and discuss how and for whom participation was constructed in relation to practices of able-mindedness and position in (dis)ability.

Method: The empirical data for the dissertation consists of four studies. Study I used qualitative semi-structured interviews to explore the experiences of people’s participation in daily activity services; the interviews were analysed with qualitative content analysis. Study II employed the observer-as-participant role to obtain observations, with analysis focusing on the discursive patterns in how power affects conditions for participation among residents in group homes. Study III used qualitative open-ended interviews that were analysed with thematic analysis to explore the experiences of participation among athletes in disability sports. Finally, study IV used semi-structured/open-ended interviews that were analysed with discourse analysis to explore how staff in social support services directed to people with intellectual disability and leaders in disability sports talk about participation.

Results: The results show that practices of able-mindedness create codes of conduct and contextual limitations to the construction of participation. People with intellectual disability labels are positioned on the margins and in dis-locations; however, the normatively deviant margin can also be the centre. Participation is encouraged and indeed an overarching aim of social support services and disability sports but only within those dis-locations.

Conclusion: Able-mindedness affects one’s right to participation and position in the societal hierarchy. Locations created for people with intellectual disability labels have good outcomes but are also ableist. The dissertation presents a base of knowledge for constructions of participation in central life contexts for people with intellectual disability labels and ideas of how able-mindedness influence participation. The results are vital for social work practices’ assessment of support services, how to work with participation and in challenging preconceptions about intellectual disability.

Ort, förlag, år, upplaga, sidor
Eskilstuna: Mälardalens högskola, 2021
Serie
Mälardalen University Press Dissertations, ISSN 1651-4238 ; 340
Nyckelord
participation, able-mindedness, power, intellectual disability, margins, group homes, daily activity services, disability sports
Nationell ämneskategori
Socialt arbete
Forskningsämne
socialt arbete
Identifikatorer
urn:nbn:se:mdh:diva-55184 (URN)978-91-7485-513-5 (ISBN)
Disputation
2021-10-15, C1-007 samt via zoom, Mälardalens högskola, Eskilstuna, 09:15 (Svenska)
Opponent
Handledare
Tillgänglig från: 2021-06-29 Skapad: 2021-06-28 Senast uppdaterad: 2021-09-29Bibliografiskt granskad
Svanelöv, E. & Talman, L. (2021). It is supposed to be a home: Barriers to everyday life decisions in group homes. In: Hanna Egard, Kristofer Hansson, David Wästerfors (Ed.), Accessibility Denied. Understanding Inaccessibility and Everyday Resistance to Inclusion for Persons with Disabilities: . Routledge
Öppna denna publikation i ny flik eller fönster >>It is supposed to be a home: Barriers to everyday life decisions in group homes
2021 (Engelska)Ingår i: Accessibility Denied. Understanding Inaccessibility and Everyday Resistance to Inclusion for Persons with Disabilities / [ed] Hanna Egard, Kristofer Hansson, David Wästerfors, Routledge, 2021Kapitel i bok, del av antologi (Övrigt vetenskapligt)
Abstract [en]

In a group home with several apartments along a corridor we noticed that atmidday many of the residents’ doors were open, meaning that everybody whowalks along the corridor of the group home could see into the apartments and see what the resident did. We noticed that there are many scheduled supportservices during this time and asked the staff members why the doors are open.It is because it is easier to provide support

Ort, förlag, år, upplaga, sidor
Routledge, 2021
Nationell ämneskategori
Socialt arbete
Forskningsämne
socialt arbete
Identifikatorer
urn:nbn:se:mdh:diva-56741 (URN)10.4324/9781003120452-10 (DOI)9781003120452 (ISBN)
Tillgänglig från: 2021-12-14 Skapad: 2021-12-14 Senast uppdaterad: 2021-12-14Bibliografiskt granskad
Svanelöv, E. (2020). An observation study of power practices and participation in group homes for people with intellectual disability. Disability & Society, 35(9), 1419-1440
Öppna denna publikation i ny flik eller fönster >>An observation study of power practices and participation in group homes for people with intellectual disability
2020 (Engelska)Ingår i: Disability & Society, ISSN 0968-7599, E-ISSN 1360-0508, Vol. 35, nr 9, s. 1419-1440Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

This study explored how participation constitutes and is constituted by practices of power in group homes for people with intellectual disability. The study used disciplinary power as theoretical perspective and was based on 50 h of observation in two group homes with a total of 15 residents. The analysis identifies practices of power and their relationship to individual agency and participation. The results show that institutional structures construct practices of power that define codes of conduct for the group home residents and their possibility for participation. This study offers implications for the daily lives of residents in group homes for people with intellectual disability.

Nationell ämneskategori
Socialt arbete
Identifikatorer
urn:nbn:se:mdh:diva-46247 (URN)10.1080/09687599.2019.1691978 (DOI)000499310300001 ()2-s2.0-85076092267 (Scopus ID)
Tillgänglig från: 2019-12-05 Skapad: 2019-12-05 Senast uppdaterad: 2021-06-28Bibliografiskt granskad
Svanelöv, E., Flygare Wallen, E., Enarsson, P. & Stier, J. (2020). Everybody with Disability Should be Included: A Qualitative Interview Study of Athletes’ Experiences of Disability Sports Participation Analysed with Ideas of Able-Mindedness. Scandinavian Journal of Disability Research, 22(1)
Öppna denna publikation i ny flik eller fönster >>Everybody with Disability Should be Included: A Qualitative Interview Study of Athletes’ Experiences of Disability Sports Participation Analysed with Ideas of Able-Mindedness
2020 (Engelska)Ingår i: Scandinavian Journal of Disability Research, ISSN 1501-7419, E-ISSN 1745-3011, Vol. 22, nr 1Artikel i tidskrift (Refereegranskat) Published
Nationell ämneskategori
Socialt arbete
Forskningsämne
socialt arbete
Identifikatorer
urn:nbn:se:mdh:diva-52828 (URN)10.16993/sjdr.676 (DOI)000605454600030 ()2-s2.0-85097435378 (Scopus ID)
Tillgänglig från: 2020-12-16 Skapad: 2020-12-16 Senast uppdaterad: 2021-06-28Bibliografiskt granskad
Svanelöv, E., Wallen, E. F., Enarsson, P. & Stier, J. (2019). ATHLETES' EXPERIENCES OF PARTICIPATION IN SPORTS CONTEXTS: USING CRIP THEORY. Journal of Intellectual Disability Research, 63(7), 895-895
Öppna denna publikation i ny flik eller fönster >>ATHLETES' EXPERIENCES OF PARTICIPATION IN SPORTS CONTEXTS: USING CRIP THEORY
2019 (Engelska)Ingår i: Journal of Intellectual Disability Research, ISSN 0964-2633, E-ISSN 1365-2788, Vol. 63, nr 7, s. 895-895Artikel i tidskrift, Meeting abstract (Övrigt vetenskapligt) Published
Ort, förlag, år, upplaga, sidor
WILEY, 2019
Nyckelord
participation, Intellectual disability, Disability sports, Crip theory
Nationell ämneskategori
Hälsovetenskaper
Identifikatorer
urn:nbn:se:mdh:diva-44940 (URN)000474486305202 ()
Tillgänglig från: 2019-08-01 Skapad: 2019-08-01 Senast uppdaterad: 2020-12-08Bibliografiskt granskad
Svanelöv, E. (2019). 'IF I'M PARTICIPATING IN MY HOME? WELL YES, WHAT ELSE IF NOT MORE!': CONSTRUCTION OF PARTICIPATION IN GROUP HOMES. Journal of Intellectual Disability Research, 63(7), 883-883
Öppna denna publikation i ny flik eller fönster >>'IF I'M PARTICIPATING IN MY HOME? WELL YES, WHAT ELSE IF NOT MORE!': CONSTRUCTION OF PARTICIPATION IN GROUP HOMES
2019 (Engelska)Ingår i: Journal of Intellectual Disability Research, ISSN 0964-2633, E-ISSN 1365-2788, Vol. 63, nr 7, s. 883-883Artikel i tidskrift, Meeting abstract (Övrigt vetenskapligt) Published
Ort, förlag, år, upplaga, sidor
WILEY, 2019
Nyckelord
participation, Intellectual disability, Group home, Power practices
Nationell ämneskategori
Hälsovetenskaper
Identifikatorer
urn:nbn:se:mdh:diva-44937 (URN)000474486305147 ()
Tillgänglig från: 2019-08-01 Skapad: 2019-08-01 Senast uppdaterad: 2019-08-01Bibliografiskt granskad
Svanelöv, E., Enarsson, P., Flygare Wallén, E. & Stier, J. (2019). Understandings of participation in daily activity services among people with intellectual disabilities: a pedagogical sociocultural perspective. Journal of Intellectual Disabilities, 2, 203-215
Öppna denna publikation i ny flik eller fönster >>Understandings of participation in daily activity services among people with intellectual disabilities: a pedagogical sociocultural perspective
2019 (Engelska)Ingår i: Journal of Intellectual Disabilities, ISSN 1744-6295, E-ISSN 1744-6309, Vol. 2, s. 203-215Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

This study sought to explore different understandings of participation in daily activity services among people with intellectual disabilities. Using a pedagogical sociocultural perspective, the research focused on individuals’ perspectives and understandings as well as their account of social interaction, working and learning. In all, 17 people working in daily activity services were interviewed once, and, of these, 14 were interviewed a second time. Using qualitative content analysis, two themes and three categories were singled out. The results show that participation can be understood in two major ways: social interaction and performing work tasks.

Nyckelord
participation, social interaction, working, intellectual disability, daily activity services
Nationell ämneskategori
Socialt arbete
Forskningsämne
socialt arbete
Identifikatorer
urn:nbn:se:mdh:diva-42465 (URN)10.1177/1744629517743578 (DOI)000469388400006 ()29169291 (PubMedID)2-s2.0-85066397334 (Scopus ID)
Tillgänglig från: 2019-01-28 Skapad: 2019-01-28 Senast uppdaterad: 2021-06-28Bibliografiskt granskad
Dag, M., Svanelöv, E. & Gustafsson, C. (2017). Experiences of using Bestic, an eating aid for people with intellectual disabilities. Journal of Intellectual Disability, 21(1), 87-98
Öppna denna publikation i ny flik eller fönster >>Experiences of using Bestic, an eating aid for people with intellectual disabilities
2017 (Engelska)Ingår i: Journal of Intellectual Disability, ISSN 1744-6295, Vol. 21, nr 1, s. 87-98Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

This article reports on the results of a pilot study exploring whether and how the meal situations of persons with intellectual disabilities (PWIDs) in need of help and support during meal situations were affected by an eating aid. This article also analyzes how PWIDs and their assistants perceived their experiences of using an eating aid during meal situations. Data for the study were collected in interviews with PWIDs and their assistants. The results are presented in five themes: independence in the meal situation, motivation to use the eating aid, functions of the eating aid, social aspects of using the eating aid, and design corresponding to intellectual disability. The eating aid’s function, user-friendliness, and the assistants’ attitudes appear to be crucial for using the eating aid. Another important aspect is the introductory and training phase, which must be fundamentally adapted to suit the PWIDs ability to learn and understand. When these aspects are controlled, the eating aid can be a tool for increased independence during meal situations for PWIDs who are unable to move their arms or hands.

Nyckelord
eating aid, meal situation, independence, intellectual disability, assistants
Nationell ämneskategori
Medicin och hälsovetenskap Samhällsvetenskap Hälsovetenskaper
Forskningsämne
socialt arbete
Identifikatorer
urn:nbn:se:mdh:diva-30606 (URN)10.1177/1744629515623167 (DOI)000408046000007 ()26705304 (PubMedID)2-s2.0-85011878116 (Scopus ID)
Tillgänglig från: 2015-12-27 Skapad: 2015-12-27 Senast uppdaterad: 2017-09-07Bibliografiskt granskad
Organisationer
Identifikatorer
ORCID-id: ORCID iD iconorcid.org/0000-0002-1813-4977

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